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#76803 07-11-2008 05:48 AM
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Andie Offline OP
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The excess mucous has finally subsided in my friend, but now he has ringing in the ears. Did anyone have this side effect from radiation? Radiation is definitely is a gift that keeps on giving. Very depressed. Will not come on site. Just wants to forget the whole experience when finished.

Andie
Friend of BOT; Stage 1A; DX April 6; TX May 6, 2008; 35 IMRT. Completed IMRT June 23. 9 more Carboplatin TX to go.

Andie #76816 07-11-2008 08:25 AM
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Andie,
I was told my hearing problems were more from chemo than radiation. I had Cisplatin.
I didn't have ringing in my ears but things sounded muffled. Kind of like when you put a seashell to your ear. Dr. had me do a hearing test before and after chemo. Lost some high-pitched frequency. Can't hear the microwave beep or tea kettle whistle unless I'm right next to it. The car radio is hard to hear too.
Hope your friend gets his spirits up. Too bad he won't come to this site. It helps Sooo much just knowing others understand you and so many have gotten thru so much. He's lucky to have you for a friend.
Karen


Karen-age 47 5/07stage 1 tongue right side partial glossectomy 3nodes removed on right. 6/07 didn't get it all-2nd partial glossectomy. 11/07 stage 3(?) partial glossectomy,flap.all nodes removed on right side. 1/08 peg tube. IMRT 39tx,chemo-cisplatin. 5/08 left side 1 lymph node w/cancer - removed
Karen W #76825 07-11-2008 01:00 PM
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Thanks Karen. Hopefully, one day he'll come out of himself and see what all he does have to be thankful for. There are tons of people on this site that are in far worse shape with such wonderful and positive attitudes. All of you are an inspiration to me and are lifted up in prayer daily. Thanks so much for all the information that's been given to me.

Andie

Andie #76832 07-11-2008 02:09 PM
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I also had ringing in my ears and was told that the ringing is the damage that's being done to my ears and sure enough I now have permanent high frequency hearing loss due to the Cis.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Same way here. Had that ringing for a few months, but now it's cleared up.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #76870 07-12-2008 05:23 AM
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Does Carboplatin cause ringing in the ears?

Andie

Andie #76873 07-12-2008 06:17 AM
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I was told Carbo was just as effective as Cis but without the nasty side effects so I took that to mean the hearing loss potential but I wouldn't rely upon my interpretation. I would definitely encourage him to have it checked out ASAP.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I also have ringing in my ears and I am 17months out of treatment. I too had Cistplatin. I have so many things that I never had before. For instance, my eyesight is deteriorating rapidly. I have had three changes of glasses in the last six months. Pre treatment I had 20 /20 vision, but had to wear glasses for reading, now I am myopic,and to read my pc monitor I have to be about six inches away from it. Plus I woke up one Saturday morning in November and looked in the mirror and saw that I had curly, no not just curly hair, but ringlets. LOL.


SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.
MargieL #76983 07-15-2008 05:44 AM
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That's odd because I just had my eyes checked and my vision has improved slightly since my last check up which was pre Tx. Bear in mind I wore glasses before.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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My vision is not what it was and I had new glasses last Nov. I understand that over time the vision will improve. The ringing ears have left me for better ground.LOL.. I was told to put nothing at all in my ears while showering, such as a wash cloth and not to try to dry them on the inside. I did listen and now they seem to be improved at least 90%. Like everything, it all takes time. This dry mouth is what gets to me. I drink so much that I have to stay close to the Bath Room. LOL I drink a lot of water, green tea, V8 juice , ensure , and coffee. Wonder if that's why I have to run so much. LOL J/K, I know it is. I better not forget my Dr ordered daily thick milkshake for calories. My Ins won't pay for the VHC so this shake does help a little, but I just can't put on weight. Still 65 lbs below what I was.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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