#76704 07-09-2008 06:54 AM | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Dan is now 9 weeks post-treatment and doing great in almost all recovery areas. The dry-mouth is of course an issue, but we assume will be forever. The main symptom now is his tounge. He said anything that is the least bit hard hurts it - his examples were chips, little debbie oatmal pie... He wanted me to see if you guys had this issue and how long it lasted.
THANKS!!!
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Apr 2007 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 27 | My tongue became very sensitive very soon after treatment ended. I had trouble moving it when I needed to talk a lot and I had to be very careful of what I ate because of a burning sensation. It is a lot better now, a year post treatment. I have no problems with moving it for speech and the burning sensation is minimal. I can eat tomatoes and citrus. I still find softer foods much easier to eat, chips, bread, green salads, meat, and chicken are still in the future.
Of course everyone recovers at a different rate and my recovery is slower than that of many others.
marilyn
dx: Stage 3 T2N2aM0 Left tonsil, base of tongue, 1 left node. HPV positive.
tx: Tonsilectomy (left) then Cisplatin x2, Erbitux x7, IMRT x35
Phase 3 clinical trial. Completed 6/28/07
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Michelle,
Just wanted to let you know how happy I am for you guys and it's wonderful to hear that Dan "is doing great".
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 |
Michelle:
Dan is doing really good. The 'hard foods' take a long time to master. Im still limited to soft foods like soup, pudding, yogurt, scrambled eggs, pancakes, squash, and milkshakes. I can handle bread with lots of butter with very small bites. It takes a while to build up tolerance to eating anything that has texture.
Christine
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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