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Joined: Jun 2007
Posts: 5,260
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I never interpreted Brian,s word as anything but understanding you situation. I can understand you nervousness with this spot. I would be too . I wish you well and have you in the prayers. LOL If I didn't make typos, it wouldn't be me typing but some imposter.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Sep 2006
Posts: 8,311
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Patient Advocate (old timer, 2000 posts)

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Little Sis,

Is it possible to get another opinion before you let this guy do a biopsy?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #76511 07-04-2008 07:56 AM
Joined: Jun 2008
Posts: 28
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Jun 2008
Posts: 28
My thoughts and prayers are with you. Try to stay calm and not freak out. Waiting for an answer sometimes is worse than the actual answer. IF something is found, they're finding it early-that's a good thing. Keep busy and try to stay positive.


Karen-age 47 5/07stage 1 tongue right side partial glossectomy 3nodes removed on right. 6/07 didn't get it all-2nd partial glossectomy. 11/07 stage 3(?) partial glossectomy,flap.all nodes removed on right side. 1/08 peg tube. IMRT 39tx,chemo-cisplatin. 5/08 left side 1 lymph node w/cancer - removed
Joined: Feb 2008
Posts: 38
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Joined: Feb 2008
Posts: 38
Brian, are you okay? Your post just doesn't sound like you. I empathize with you and wish you had more time to relax. Maybe your venting helped you. In any case, I hope you have a chance to enjoy this holiday weekend and do something wonderful for yourself. That's so hard sometimes, isn't it, when we work so hard to help others. It's your turn to take a little time away from the frenetic pace and enjoy some deep breathing and sighs that exhale the stress away. Please take care of yourself--and let others help, too, when we can :-)

All the best to you.
Happy 4th



Non-smoker non-drinker, 50 when diagnosed 9/11/06 stage IV scc of oropharnyx, malignant lymph nodes both sides of neck. Cause=HPV16. Daily chemo & daily IMRT for 7 weeks. In 2 clinical trials at Johns Hopkins, good results. Peg tube out March 07. Update September 2014: gratefully in good health!
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