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Got an Email from Biotene stating that the dry mouth spray is finally available. Says it is available at Wal-Mart, Target, Meijer, Longs Drugs, Kroger, Ralphs, Drug Fair

Wonder what flavor they went with, 1 or 2 smile

Remember, we tested it here first smile

Kevin



9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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Kevin, I also tested the spray, but I had already devised my own spray, which I liked better.....and still do. I keep a small travel-sized bottle of the regular Biotene mouth wash by my bedside, and another in my purse, and I give several sprays for good relief. The flavor is refreshing, and it works for a while. It might not be quite as long-lasting, but it was more pleasant.

I'll try the spray that they are offering, but I am betting that I will like my own invention better!

XO


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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That's the one thing I think we all can agree with. If it works, keep on doing it!

You'll appreciate this. I actually managed some crawfish this year. Now Crawfish in Memphis are not like down there, but the fact that they were cooked in some crab boil and I was able to eat em....oooooooooweeee

cest bon!

Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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Posts: 794
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Laissez le bon temps roulez, Kevin!! Geaux, geaux, geaux!!!

My sister and her husband are big bbq'ers, and they will be manning the Holy Smokers' booth at Memphis in May next week. Go see them and introduce yourself as one of Colleen's internet cancer friends. My sister was my post-surgical nurse. Elizabeth and Jimmie Madden, being assisted in the booth by their grown children and other team members...It's a tremendous amount of work, but they love it!

XO


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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Very Cool

You're right, it is a lot of work. We have three guys here at the office that are on teams and they are going to start setting up this weekend.

I am going to try and get downtown for the BBQ next weekend. I really want to take some pics. If I do I'll definitely look up your sis-n-them. I jus hope the rain lets up. The music festival last weekend got pounded with rain on Friday night (thats why it has been nick-named the Memphis in Mud Music Festival, and looks like this weekend will be a wet one too. At least this weekends activities are mostly indoors.

And for those of you that do not have a clue what we're talking about:

Memphis in May

BBQ on the river World Championship Barbecue Cooking Contest

Basically a month long party in Memphis

sorry, no Elvis smile

Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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I FINALLY found it (by accident) in our local WalMart this past weekend...I had been looking for ANYTHING to help with hubby's dry mouth...pleasantly surprised to find it...Buzz was SO glad...he really likes all the Biotene products!


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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I am another who tested the spray and I finally got thr timr to run out to Walmart and buy some. I was going to stock up but when I saw that they said ti had a mint flavor I became worried that it would be mint so strong it would burn my highly sensitive mouth (as the mouthwash does) even though neither of their test sprays did that.

Well the good news is it IS a mint flavor but there's no burning sensation and since the one really chronic dry spot I have is at the upper back of my mouth--it is much easier to get moisture right there with a spray. So I am very very happy. Thanks LaClede!


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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The spray and liquid gel is good (As is all their products) but thank God for the gum!! I keep a standing order with my pharmicist for about a dozen packs and on some days I go through an entire pack. In my profession I spend the day speaking and the gum helps mosturize, stimulate saliva as well as keep my jaw limber. It's AWESOME! If you haven't tried it I would highly recommend it.
Thank you Biotene.

Regards,
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

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Yes, I agree. I spend most of my day talking (ask my wife) and the Biotene gum helps a lot. When I chew I don't even think about water. My only complaints are that it doesn't last that long before it will disintegrate it my mouth and it's very expensive.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I tried the gum, didn't do much for me, sadly to say.


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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