#69643 02-10-2008 06:40 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Hello all
I know I havent been around much ..been sick and so have the kids however I am trying to read as much as I can.
Yesterday , It was ONE YEAR since my surgery , so I have been cancer free for a year !! 1 down and 4 more to go !!! actually a lifetime to go !!
My friends and I went out to celebrate and even Joe realized how important that the day was to me .
Unfortunatley , I have a sore now that has been there for about 6-8 weeks , the ENT ( not the original one who did my surgery yet I have been with him since may or so ) thinks it "LOOKS" benign , I don't find comfort in that as I was told by 3 medical professionals that my 1st was nothing... It was the biopsy that told us different. So My Gp saw me last week for another Repiritory infection and saw the sore ..wasnt happy , said he wanted the ENT to biopsy . He said that he also feels it may be nothing but they have been wrong before . and that he would rather see it be nothing in a lab rather then my mouth !!! He was going to contact the ENT and I should know more this week about what happens. I have to stop the blood thinner before he can biopsy .
It did feel Great to hit that one year though ,, I joked that I couldnt have the biopsy before then as I needed to Get to one year without hearing anymore bad news !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | And just how can you find comfort by what he "thinks" it looks like? I am so glad you had the 1 yr of being in the light and hope you have another 60 yrs or so. Let us know about the biopsy as soon as you get the results. Your old buddy Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Sharlee,
Congrats in the one year but you know the routine...get that thing checked out until all agree on what it is.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Sharlee, I have had my ENT tell me a sore "looks" benign and it always worries me, though so far he's been right (the sore eventually goes away). So try not to worry but I agree there's peace of mind in having the biopsy. Congrats on the one year date.
The three year anniversary of my surgery was this weekend--Feb. 9th and since that is the last time there was known cancer in my mouth (though I did have chemo and rads after to be safe), that was a milestone for me too. Anyway, may you have many many more anniversaries and no more biopsies!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | My Anniversary was Feb 9th too !!
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | I'm so happy for you! We need to find some time soon to catch up!
Congrats!!
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Shar,
Congratulations on reaching your one year anniversary.
I hope this new sore turns out to be nothing.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Sharlee---congratulations on the one year mark! Whew!!
Crossing my fingers and hoping the new sore is NOTHING!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Shar... you are the bomb!
it`s nothing ..it`s nothing...it`s nothing... you have too many years and kids to raise ahead of you!
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
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