#69256 02-04-2008 01:35 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I had a physical today after rads. Their scales 34 lb loss too. They also checked my mouth and throat. I have blisters on my gums and throat. The Dr ordered some mixture to wash my mouth with. LOL The druggist has the ingredients but has never mixed them. He is calling a bigger drug store so he can get the mix right. I go the 14th to see the OS , the 18th for blood work, the 27th for pre op and the 29th they are going to do the implants.Geez 3 days of sleep . LOL This thing can't hurt much more so I'll grin and bear it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 82 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2008 Posts: 82 | Thinking about you bro. Hang in there.
John - Proud to be here...
Hemiglossectomy 08/02/07, 4 lower molars extracted prior to 6 weeks IMRT 09/10/07-10/19/07, SCC w/met to L neck lymph nodes, rad only, no ND. PEG 10/26/07-02/05/08.
"We're all in the same boat in a stormy sea, therefore we owe one another a terrible loyalty."
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Dearest Jim
i have to say this even though it pains me to do it
[quote]this cant hurt much more so i'll just grin abd bear it [/quote]
It certainly can hurt much more,and you should NEVER grin and bear it.
Please Jim don't go on trying to do this tough.You keep telling Bren to fight for her pain meds take your own advice sweetie,and get a peg and get a patch,you still have a long way to go and you dont want to be wiped out by pain,fatigue and lack of nutrition.
You know David will be on your case if you dont!!!
take care love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Jim,
Practise what you preach, man!
This afyternoon my nurse is coming to re-evaluate my pain-meds-and am going to be totally honest and telling her it's getting past the stage where I can 'grin and bear it'
Tomorrow I have a day free from Optician, Doc, Hospital, Nurses etgc and will be quite happy to spend it in a peaceful drug-induced haze, lying on the couch and watching recordings of NCIS and Two and a Half Men!
Did make myself laugh this morning--a man with a spear going from my chest up through my cheek woke me up and I felt so dire, I thought, 'Hell, what if there's something SERIOUSLY wrong with me?????'
Anyone else get these crazy ironic moments???
What you CAN grin and bear about it Jim is the thought that it's a means to an end--surviving for your lovely family snd friends....in the meantime, let's all do that hippy stuff we missed out in the 60's and get 'spaced-out'--can't wait!!
Take care boyo,
Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | THanks for the encouragement. I do take the pain meds but sometime wait too long. This stuff is teaching me I'm not as tough as I thought. I told the Dr I will do whatever he says and do my best mentally to win this war. With friends like you, how could I possibly not give my best in this skirmish? I'm gonna fight just like Brenda does and let OC know it's not going to control my life or what I can and can't do. I want Robin to look down and say, " Go get em Jim ".
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jimbo,
Is there anyone watching what you consume everyday and making sure you keep up with the "program" ?
If not, maybe you need to report to me each am. LOL
I'm watching you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL David, I knew I could count on you to put a smile on my face. And yes sir, I drink my carnation as ordered. LOL.. I don't want you to lose any commissions. I do my damndest to get the nourishments I need daily. I can't afford to keep buying new clothes that fit this new body. Have a great day "Turkey" LOL Damn that devil making me say that.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I'm watching you, too, Jim! 
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Jim,
I am going to get a little tough with you as well re: the nutrition and hydration. It is so important and for me, even as a caregiver, keeping up with how much was consumed per day became a great big haze until I started charting it. Just something as simple as a notepad...write down the hour, ounces or cans consumed and water consumed....if you do water (at least 8 oz) with the VHC everytime(and I mean everytime) you won't have to chart the water.
The combination of your treatment and your pain meds will make keeping up with all of this difficult. Please make this a priority - it will make all the difference. I still say you need a caregiver but I understand that is easier said than done.
Hang in there, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Jim,
If you don't keep up with your nutrition and fluids we will all have to chip in and send David up to be your caregiver.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | |
| Forums23 Topics18,170 Posts196,934 Members13,107 | | Most Online458
Jan 16th, 2020 | | |
|
