#69197 02-03-2008 05:17 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | OP  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | A article appeared in the above Journal in it's Feb 08 issue titled "Incidence Trends for HPV..." but you have to be a subscriber to view the full article. Can anyone help?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | If this is the article by Gillison et.al. that is being quoted in all the news media yesterday, I have already posted the relevant synopsis of it on the news section of the OCF web site, and the article is not going to elucidate much more than what is there. http://www.oralcancerfoundation.org/news/story.asp?newsId=2066 (Does anyone read the OCF news or subscribe to the RSS feed?) Relevant comments about it can be seen on the first blog post on this site http://www.oral-cancer.info
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I must say this should make people think about how they have sex. Thanks for the info.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | No one is going to stop having oral sex in my opinion. And even if you did, it is clear that while this is one method of transfer of the virus it is likely not the only one. Studies are ongoing to look at things like just intimate kissing. Oral sex, for lack of a better term, was the low hanging fruit and an obvious means in the early articles. We are going to find that the virus can be transferred by other means in the next year. As we have said here before, getting the virus does not mean for sure you will get a cancer, it does not mean that your immune system will not just deal with it, and so much more. What we do not know about all this far exceeds what we do know at this point in time. I have articles which I cannot share because they are embargoed for publication in the next few months, that elucidate this somewhat better, but we are still a long way from knowing everything that we need to. Sexual behavior in not only the US, but the world, has been changing particularly since the free love days of the 60's. We are seeing sociological changes, and spin off events from them. Oral cancers and this virus are just one of many.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Well said Brian. I jumped on the HPV bandwagon as soon as I found out that I tested positive for HPV 16. But the more I read and the more I talk to people like Brian and my RO, etc, the more I realize how complicated this subject is. I was also told over a year ago by the Director of Pinellas County Infectious Disease that HPV can be transmitted by mouth to mouth kissing and it is highly contagious. But as Brian says, just like tobacco, alcohol and betel nuts, not everyone who is exposed gets OC. Lets hope they can discover the many mysteries surrounding this and all cancers.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | [quote=Brian Hill]I (Does anyone read the OCF news or subscribe to the RSS feed?)
You betcha - I'm in !
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | Me too on the RSS feeds. 
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Me three on the RSS feeds. They are great!!! If I want to recommend them to someone, is it just a matter of giving them this link?: feed://feeds.feedburner.com/oralcancernews
Does this automatically subscribe them? I don't remember how I got them, but I do and check them every day.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | I added the feed to my Yahoo homepage and put it at the top.
I liked the latest about the regenerated jaw using the patient's own stem cells which were grow for nine months in his fatty cells in his stomach. I have more than enough fat cells which I would appreciate transforming into something else and I've had nine month growths in the stomach twice and after 30plus years am happy with the results.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I saw that too and it is just amazing! Imagine growing a jaw inside your stomach - just like growing a baby only without the morning sickness! That's a good reason for keeping your fatty cells around.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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