| | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | HI Ginny! You know we are all pulling for you. You've got a great support crew here, and it sounds like your husband is doing what he can to keep your spirits up until the 22 & 23. Hoping you can keep your mind from dwelling on this until then. We wish you ALL the best...until then....and a GOOD REPORT after!
Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Does reading these posts make anyone else tear up a little? or is I'm too sensitive? I do have to say if I don't come here a few times a day,, I feel like I cheated.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | NAw Jim
I tear up alot !! Good and bad and some days more then others...I have to say I probably come here daily ( somtimes 10x a day ) I don't always post...But I read !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | I'm a 2 or 3 times a day addict--it's my therapy--but I also 'feel' everything that's written
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | This is like having a new baby. you just can't wait to see and cuddle it close. I read all the posts too and look forward to new ones.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | It's amazing to me sometimes with everything happening to so many of you, you can still take the time to offer words of support, help and comfort to everyone else. This is what makes this site so special...
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hi Ginny, If it is one thing that cancer does do, it teaches us how to sit and wait.  It will drive you nuts at times. Hope you can learn to relax some until you see your Dr. Easier said than done. Know that we are all here for you and a lot of us have waited in that Cancer waiting line before. You just fight them as they come. One at a time!! Take care, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2007 Posts: 64 | hi . I really hope im in the right place.IM about to drive my self crazy waiting for tommorrow.i go back to ent for my2mo check up .jJust seen him in nov.Said everything looked good.The waiting is the pitts.went to gp fri more antibotics thats a suprise maybe thrush.How long does it take for rad to heal.?im afraid i have already screwed up by smoking.please pray for me do they use tumor markers i n vocal cord cancer.
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Hi Everyone - thought I should give all you wonderful supporters an update. Just got back from MD Anderson last night, and the good news is that my CT Scan was NEGATIVE - and my doc said he made sure the "best" H&N radiologist read it - and both my docs said they didn't think the enlarged lymph node was anything to worry about, just another one of those unexplained slightly enlarged lymph nodes we all get. YEAH!!! I cannot tell you how relieved I was. What a wonderful blessing... one of my nurses who is such a caring person gave me a huge hug when she heard the news, and told me to be sure to thank the person above, which believe me I am doing all the time...
How I wish everyone else who's going through this could also get such great news. It does make me feel so thankful but yet so sad that others have not been so lucky, who are just as deserving of this as I am... so feeling humble about this at the same time. God bless everyone...
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Ginny,
So glad you got a good report. Bill and I do understand your emotions...you are almost ashamed to celebrate when you know a lot of your fellow OCFers and other oral cancer patients don't have the luxury of a clear scan.
But just take a moment to rejoice and thank the "Great Physician" and your earthly doctors for your apparently clean bill of health.
Congrats, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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