#50463 12-14-2007 02:09 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | OP  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | As long time posters and OCF members know I have worked with Blythe Danner, Gwyneth Paltrow's mom and widow of director producer Bruce Paltrow who died in 2002 from oral cancer complications, to produce TV PSA's on oral cancer and have her speak on Good Morning America and in People Magazine about the disease. On Monday we will be announcing a new collaboration with the Paltrow family, The Bruce Paltrow Oral Cancer Fund. While part of OCF they will be allowing us to use their family celebrity to raise money for OCF, and next year we will extend that to doing print public service messages with them on oral cancer. The fund in now active and our new store interface is in place with the fund in it as well. You can now make donations in any amount and not limited to some preset dollar amount. To begin reading about this (press release out in full on Monday on a national level) you can go to this page of the site http://www.oralcancerfoundation.org/donations/ and at the bottom of that page click into the description of the Paltrow Fund. At a time when donations to OCF are at a 5-year low, I am hoping that this will bring us the attention of donors that do not come from the ranks of patients and their family members. National attention with a very A list name will hopefully assist OCF in making the progress to public and professional awareness that is needed, and stay active in the national dialog to change screening protocols, and offer help in areas where it isn't available. While many of you only see the side of OCF that is here on the web, we are involved with the CDC, the NCI, the FDA, the Public Health Service, the ADA and others pushing an agenda of early detection, and working on problems such as HPV vaccination, tobacco cessation and harm reduction strategies, and many other issues.
Last edited by Brian Hill; 01-01-2008 06:50 AM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50464 12-14-2007 02:35 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Congratulations Brian. I know how hard you have been working to get this off the ground and I hope an pray that it will help to bring in those much needed funds.
Call me stupid, but I haven't given up trying to get to Warren Buffet. I didn't get any response from the email I told you I sent, so this week I wrote him a letter. I'm really not counting too much on my letter actually reaching him, but you never know!!!!
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50465 12-14-2007 03:08 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Brian - It is wonderful what you are doing and I'm sure this latest collaboration will bring impressive results! Congratulations!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#50467 12-14-2007 04:14 PM | Joined: Jul 2007 Posts: 44 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 44 | Dear Brian,
My son's medical bills have wreaked havoc on my budget -- but I'd really like to do something to help. I've been researching fundraising for the non-profit agency where I work and there seems to be a science behind writing an effective "ask". I applied the techniques to my first appeal letter for the agency and ended up with a 12% response rate. Mind if I fiddle with a sample?
darcy (Matt's Mom) | | |
#50468 12-14-2007 05:53 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 |
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50469 12-16-2007 06:45 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | Jerry.... I appreciate your trying Buffett. It took me three years to develop the relationship with the Paltrows. I think the name of the game is tenacity mixed with a compelling but respectful manner.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50470 12-21-2007 01:28 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Brian, I just wish I had the funds to donate to the foundation. It seems my outgo now is starting to exceed my income. I live on a fixed income and this good old OC has made me watch every penny , which I'm not used to at all. Can you give me the location of the store? That way I can buy what is needed and support a little.. I would also like to thank you for this site. Seems I have a great family here and someone I can express my feelings to.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | If you haven't done so yet and have the desire, today is the last day to send a personal note to Blythe Danner about her donation which was used to buy and build this new message board software. I will be emailing her about the thread tomorrow morning. The thread is here: http://www.oralcancerfoundation.org/forums/ubbthreads.php/ubb/showflat/Number/66240#Post66240She has made a long term commitment to our community, and it would be a nice gesture for her to hear from people about what they get out of OCF.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Brian, the link you posted gives me a "page not found" error
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Eric, That link is from 1/2008 and appears to be deleted. If you want to read about the Bruce Paltrow Fund, just click on this link. http://www.oralcancerfoundation.org/paltrowfund/index.htmlJerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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