#60513 03-29-2007 03:53 PM | Joined: Jun 2005 Posts: 49 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2005 Posts: 49 | Has anyone heard from their doctor not to take vitamins because it stimulates the good and bad cells? My sister is a Leukemia patient and she said her doctor said this. My sister keeps very up to date on her condition and I am just wondering if she read this somewhere and maybe is getting confused and the info is not scientific.
Dx June 2004 stage III right tonsil 1 node involved, 70 radiation tx completed 08/20/04, no chemo or surgery, 32 years old and 26 weeks pregnant at dx and tx. & non-smoker and non-drinker
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#60514 03-30-2007 01:44 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | I think quite a few people here have posted that they've been advised NOT to take vitamins during treatment, because of the possibility that they could promote the growth of the wrong cells. If your sister is currently being treated for leukemia, it wouldn't surprise me that her doctor told her this.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#60515 03-30-2007 11:17 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Mary,
My docs wanted me to take Vits as long as I could get them down. I also drank multiple cans of nutritionally balanced foods packed with vits which easily exceeded 100% of everything everyday so I can't believe someone would tell you otherwise.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#60516 03-30-2007 11:30 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I was advised not to take extra vitamins during treatment. I was told I could take a multivitamin if I wanted (and I had no choice once I started using jevity for my nutrition) but that higher doses of antioxidants were not advisable. Once treatment was over, it didn't matter to my doctor. But there have been sme scary studies abiout the effects of vit. E and recurrences. Rhe fact is, no one really knows how antioxidants affect cancer tumors or cells. The only vit. that has good solid research showing it to be HELPFUl is vit. D in preventing breast cancer. I take extra Vit. C and D now and that's it.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#60517 03-30-2007 03:13 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | During my treatment, the nutritionist told me that three cans of any of the nutritional fluids (Ensure, etc.) contain a daily dose of vitamins. Considering that I was consuming seven cans daily, I was already doubled up on the common vitamins...
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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#60518 03-30-2007 03:20 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | John's Oncologist essentially told us the same thing- IF John was getting the 2000 cal. a day of the 2Cal HN, he could suppliment with the Centrum Silver [regular dose] and that would be suffient. We were cautioned not to venture into "unknown waters" with vitamin \mineral suppliments. Amy in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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