#6013 09-02-2005 02:25 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | This is new thread for us to concider a location and time for another get together. Hawaii would probably limit the number of members who can afford to attend. The location shoud be somewhere that allows more members to attend. With the cost of gas I'm sure we will see airline tickets rise. We still need someone to step forward and take on the duties of putting it all together. Location, dates, romm rates, activities. etc.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#6014 09-02-2005 03:35 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2004 Posts: 218 | How about somewhere warm? It's gonna get cold here any day.
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04. 41 Years Old At Diagnosis
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#6015 09-03-2005 07:41 AM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jul 2005 Posts: 150 | You may all laugh at this and want to punch me. I am suggesting Minneapolis-we are going to start to plan a benefit for Oral Cancer. Of course, we plan to invite every one- My dad is finishing his treatment next week--
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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#6016 09-03-2005 03:04 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Sydney's warm! LOL Helen 
RHTonsil SCC Stage IV tx completed May 03
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#6017 09-06-2005 03:24 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Danny, You had three couples beside Brian who said Hawaii sounded good. Gary said that he found a price for 7 days from LA for $1298. I chekced one from NYC and it was $1800 for two. Airfare for us east coasters is the same to Califoria coast as it is for Vagas unless special package. Airfares to middle america are generally higher.
Money is not my problem. Time is, so I need time to plan but don't don't delay for my part. I'love to go to Hawaii, but the only way I can drag Charlie is a convention so this could be a plan. He hates humidity and the mosquitoes eat him alive.
So is anyone besides Danny, Kris and Gary, and maybe me up to going to this?
Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#6018 09-07-2005 05:44 PM | Joined: Mar 2002 Posts: 45 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Mar 2002 Posts: 45 | Minneapolis works well for me and I'm sure Mark would agree too! No mosquitos or humidity after mid September....
Stage I diagnosed 9/18/2000
Dave
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#6019 09-08-2005 04:20 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2002 Posts: 546 | Hawaii sounds great. I think I can talk Greg into that as long as we find a good package deal. We don't generally spend a lot on vacations, but I think we could swing it.
Minneapolis doesn't sound too bad either, except I think the airfare will be quite a bit higher than to someplace like Vegas. ShawnaMargo, do you have any idea about when the benefit will occur? I'm wondering if the time wil coincide with the time of the reunion. Do we have any idea on what time period we are looking at for the reunion?
If Hawaii, next April/May because that is the value season? Does April/May sound good otherwise or were you all hoping for something sooner?
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#6020 09-08-2005 05:14 AM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2004 Posts: 134 | How about Los Angeles where I am? :-) The weather is beautiful! :-)
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#6021 09-08-2005 05:34 AM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2004 Posts: 134 | Helen,
I would love to come to Australia. I am a scuba diver and would LOVE to! That is my dream! maybe I will get there someday...Just work does not allow me to take too much time off at one time! But I will do it soon, hopefully :-) Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#6022 09-08-2005 03:16 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Yup Dave Minneapolis it is! bring your ice skates and sled after October and before August. Danny boy would love a trip to Viking Land.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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