#56217 03-16-2005 10:01 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | thanks for ur kind words and prayers everyone eileen i will certainly take u up on ur offer re ??at a later date best regards to all maz | | |
#56218 03-16-2005 11:41 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Just a few thoughts I had after i posted. Make certain that you have a surgeon that has done a zillion of these and is a good plastics man. Also,
I have only seen two of these and am told that they 'don't do that anymore', but I know two people who ae wearing a horrible metal neck collar that apparently also hurts. Make certain that doesn't happen to you. I have nothing around my neck and just glue on an circular adhesive and insert a HME value in the morning. Do ask lots of questions. A speech therapist should have evaluated you and explained what to expect. The one good thing that came from my surgery is that I was able to eat a lot more foods like bread that hadn't been able to eat after radiation.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#56219 03-16-2005 11:43 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hi hellen were in the boro did ur dad come from luve to know.regards from me maz | | |
#56220 03-16-2005 01:02 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hi Maz
The address given by my dad's mother on his birth certificate is 9 Leven St Middlesborough West. Anywhere near you? He was always very proud of his Yorkshire heritage - born 1922.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#56221 03-16-2005 05:50 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maz,
I am truly sorry to hear of your new challenges. I am praying for His strength to carry you when you need it; His wisdom and guidance for your medical team to develop the best possible treatment plan for you; and for God to provide you with comfort and peace.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#56222 03-17-2005 02:55 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hellen ,leven st 10 mins away i remember it well anythingelse ur dad used to talk about its a small world init .iwas born west lane, middlesbrough,1942 there is a special edition of amagazine i buy they print 2 or three a year called REMEMBER WHEN. I LOVE IT catch u again regards maz | | |
#56223 03-17-2005 06:25 AM | Joined: Jan 2005 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 108 | Hello Maz; Just another one of your support group chiming in here. You will make it! Isn't it wonderful how many folks there are here who have jumped out of the jaws of "the beast"..it continues to be an inspiration to me and I hope it will to you as well.
Blessings, Fran
SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05.
Committed to survival with dignity.
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#56224 03-18-2005 02:59 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Maz,
You know those fighting gloves are the right attitude! And if they start feeling warn out, we're here to send you new ones!! Keep punching away, I'm pulling for you!
Sabrina | | |
#56225 03-18-2005 04:13 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | HI FRAN,thanksfor ur support i realy appreceate sp]it yes i hope to break away from the beastand bounce back my regards maz | | |
#56226 03-19-2005 12:25 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | thanks for ur support sabrina i intend to keep fighting on my best regards to you
maz | | |
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