#56069 01-12-2005 01:47 PM | Joined: Dec 2004 Posts: 5 Member | OP Member Joined: Dec 2004 Posts: 5 | OK,so I guess I just want to be reasurred that others have had a rough voice after a cold that lasted a month. I have been to ENT 2 weeks ago, larynx still vibrates so he thinks if its anything it would be microscopic a this point (oh joy)and the CT scan was fine (I had fluid and larynx was red) adn am going to see him next week. I am so tired of having ill thoughts in the back of my mind. I am trying to remain positive and proactive eating organic, lots of fresh greens, garlic..etc etc. This whole sometimes just really keeps me from thinking ahead which can be good and bad. I guess I just need to hear from some of you good people. I am doing all the footwork, just want to know if anyone had similar "stuff" and how did it go?? (yes I want the lightning bolt to come down with allll the answers, but ofcourse>>lol)
judy judy judy | | |
#56070 01-13-2005 02:09 AM | Joined: Jan 2005 Posts: 108 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 108 | Hi Judy; I can't speak from ca of the larynx experience but I am very familiar with the loss of confidence in ones survival that seems to kick in whenever there is even a small glitch. This is a nasty form of cancer and cannot be trivialized, BUT, there are so many strong survivors especially around the boards at OCF. Take courage from them. The more knowledge we have the stronger we get. Yes I confess that every ache and pain or scratchy throat I've had in the last 9 months has jangled my confidence. After my head& neck& chest rads the vocal chords got very "sultry" and now, if I don't talk for an hour I croak like a frog, and I can't sing anymore. Is the cancer back, not likely, but I still see the Docs every month and make them have a good look around because I feel better that way. This is a whole new post-cancer enlightened type life we are living. Be prepared for victory...it sure can't hurt. Blessings to you, Fran
SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05. Committed to survival with dignity.
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#56071 01-15-2005 09:02 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 156 | hi judy i am in remision re cancer of the larynx,i had20 sessions radical r therapy that was march 2004 on my first check after rad consultant said tumour had gone i was walking on air , dec 2004 there appeared to be a swelling on right vocal chord plus hoarse again just been in dock again forbiopsy on suspect growth+pan around for any reocurrent tumour got some feed back straight after surgery re secondry tumour nothing sus found waiting for results of biopsy.still hoarse and cant sing LO.L regards maz | | |
#56072 01-15-2005 11:08 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | Judy: Expect all kind of wierd stuff to occur from radiation and chemo side effects.. From throat swelling due to lymph nodes not being able to drain properly (Bull Frog Throat), changes in Vocal ability and tone, inability to swallow properly, and many other things and some indignities. But , all the wierd side effects, are just minor compared to still having the Cancer to fight. I never could sing, but I could go to church and make a joyful noise. Now I make a noise worse than before but I am still Joyful. Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#56073 01-21-2005 02:09 PM | Joined: Dec 2004 Posts: 5 Member | OP Member Joined: Dec 2004 Posts: 5 | yippee. I went to my ENT yesterday and had the scope, and he said my larynx looked better than it has in months, AND my hoarseness just went away. He explained that the after treament issues are different now that the rad is so much stonger and focused. He said there is less recurrance, but more side effects, well you can guess which one I'd rather have, bring it on! I feel a huge wieght has been lifted. I was seriously scared!@ It kept me in low funtion no planning mode. Thanks for all the info and commaraderie here. If you are hoarse this will hopefully ease your mind a bit. judy | | |
#56074 01-22-2005 03:06 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | good news Judy! For what it is worth, I found singing to be theraputic. (people around you might not but that is their problem ) 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#56075 01-29-2005 02:33 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | HI Mark, I sure like your attitude about life. I wish we could all live like that. I had tongue cancer and lost my singing voice. I didn't mind in the least. At least I'm still here after 15 years of being cancer free. Cathy PS Mark were you a Professional Doctor or Did you do a lot of reserach?
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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#56076 01-31-2005 05:32 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Thank you for the compliment Cathy. No I am not a doctor, but I did stay at a Holiday Inn Express. 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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