#5573 06-24-2005 01:25 AM | Joined: Jan 2005 Posts: 108 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jan 2005 Posts: 108 | Although I don't have enough confidence to post on the "Survivors" board, I still want to share a piece of good news.
The extended neck dissection in Feb. was not able to achieve any real margins (less than 1mm) and the surgeon said it didn't look good. Well guess who just had a clear MRI ?! The surgical area shows radiation changes, but no new tumor growth. The relief at being able to plan a few months ahead in a believable way is such a boost.
Guess we have to believe in miracles, both little and big.
This is good medicine for my whole family.
Fran B.
SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05.
Committed to survival with dignity.
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#5574 06-24-2005 02:19 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 |
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#5575 06-24-2005 03:20 AM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | That's really cool! The stress will kill ya, won't it? Live in the moment anyway! Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#5576 06-24-2005 05:50 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Awesome news, Fran, thanks for sharing it with us. Take Care, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#5577 06-24-2005 11:05 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Oh Fran I am so happy for you. Let the celebration begin! Everyday we are still here and breathing we are "survivors" in my opinion. I salute you!
May your blessings continue,
Barbara~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#5578 06-24-2005 11:20 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Congratulations Fran, Thankyou for sharing such wonderful news. Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#5579 06-24-2005 12:48 PM | Joined: Mar 2005 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2005 Posts: 54 | Congratulations to you! It is always awesome to hear success stories. Thanks so much for sharing yours. I am very happy for you. Best wishes in your continued success!!!
Rick T
Stage II SCC(T2N0M0). Dx:Jan.05 Surgical removal w/Neck Dissection (nodes clear) Feb 1,2005.
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#5580 06-24-2005 02:23 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thanks for sharing such good news Fran!!!
All my Best, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#5581 06-25-2005 06:15 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I'm so very happy for you Fran!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#5582 06-26-2005 04:36 AM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | It seems to me that deciding when you are a cancer survivor is an arbitrary thing. John finally saw our family Doc on March 15th,05, after living with this "canker sore" under his tounge for 8 months or longer. Surgery was Apr 21st and rad tx's are still in progress. In my mind he has been a survivor for almost a year now[maybe longer because he can't remember when he first detected the sore.] John just came in and read this over my shoulder-something he rarely does. Here's what he said. "you know, I view this cancer in the same way I would view an ulcer or a bad case of hemorrhoids. I got it, the Doc's are treating it and when the tx's are over, I'm not gonna worry about it any more." What a great attitude! Now, if I can get my psyche adjusted to that, we both will be sleeping well at night. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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