im 2 and a half years out of treatment and my spit glands seem to be trying to work again, there is actually days i can spit, i know that sounds groce but to me im excited about it, has any one else experienced this going from a mouth so dry u could pull dust balls out to actually being able to spit, there is times it is thick but they seem to be trying to come back, every thing i have read and have been told once you loose them there gone, is this just a temp. thing or can they come back?

It's one year since I began my rads and for the most part I am still dry...but not as bone dry as it was six months ago. On a recent trip to the dentist, she said she could actually see a lttle saliva pooling in the bottom of my mouth (very little!) but I'll take what I can get.
If at 2 1/2 years there is continuing progress I am delighted to hear it. I am also delighted to hear of a 2 1/2 year survival. I'd say you're hitting on all eight cylinders Coop..congratulations.
Fran B

Nothing gross about it. Coop. Going in, I told the rad people to do their best, and all I wanted when it was finished was to be able to spit. Strangely, the side which received the most rad, where they told me I would lose the salivary glads, is now back on line. I am 3-1/2 years out and the saliva function just keeps increasing to where I must be 95% of normal. Hang in there!

I had IMRT radiation and i lost about half of my saliva function. I am two years out from surgery
on July 31st. I can't spit due to the surgical procedure. Congratulations on being two & 1/2 years out. Sounds like you are doing well.

Hope it continues to improve for you.

Best Wishes, Danny Boy

Just you spit away Coop...lol thats great , congratulations.
Marica

We need to have a spitting contest!! I've found in the last few weeks if I focus a little in the morning before I get out of bed & run for a drink of water that spit will start to flow sometimes. I've actually woke up a couple different times & was excited that I had drooled a little bit. Maybe I'm dreaming of food or something! A round of spit for all who need it, on me!!! Ah, the simple things! Erik

Like Joanna, my salivary function has slowly improved over time. It can take 18 months or longer. Sometimes I even forget my water bottle now.

Like some of the others here, I saw some improvement within a year or two after my treatment ended. What surprises me is that even now -- after 16 years -- I'm STILL noticing incremental improvements over a year or two ago.

Spit happens! :p

Cathy

thanks yall, i was told once there gone there gone my ent told me he had never seen anyone as dry as i was but now it does seem to be getting so much better and yes i forget my water alot but i reckon it is the panic thing when i notice it isnt with me i stop and get a bottle lol, now if i could just get on some more weight, but what the heck i eat all i want and it makes other people sick to see i can do that so i guess it has its good sides to

Happiness at cha buddy. I hope they continue to improve each and every day.
Bless you,
Barbara~