#5525 06-14-2005 02:50 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Probably this has been addressed alot already, so forgive me for posing an "old question". I keep wondering why we can't have a Food forum-i.e. one place where a large number of easy to swallow or really nutritious or pain reducing or appetite enhancing food ideas could be catalogued. I have gotten so many great suggestions and ideas for ways to feed John from this site-but they are scattered everywhere-some have come from direct "question posts" from me-some as I read different forums- and I know I have missed alot. I also know that providing food is a big question on the forum. If there is any interest in pursueing this, I would volunteer my time to get it going. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#5526 07-04-2005 11:21 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Jam, I miss Arkansas and saw your post. I will
look and see if there is a food forum on the internet.
Cathy
PS Have moved to Florida.
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#5527 07-04-2005 01:21 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi Cathy, I take it you once lived in Ark. Where were you? Do you like Florida? Any food forum tips would be great. Thanks, Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#5528 07-04-2005 02:53 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I would LOVE to have something like that here. I am just starting to try to eat things again after being on the PEG. I have bad mouth sores and everything hurts. I'd love to find one place here where I could go.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#5529 07-04-2005 03:48 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Nelie, I have e-mailed Brian to see if there is a possibility of gathering ideas and recipes together in one spot. I think lots of us could benefit from this. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#5530 07-04-2005 04:18 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Wouldn't that be a new thread in "Currently in Treatment"? Most of us have a nutritionist as part of our team and most of the tricks for making soft foods, smoothies, etc. are well published information. You might try a search in "all open forums" for food, blender or recipes. Also if you go to the home page and do a search on recipes a vast amount of information will be instantly available to you.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#5531 07-05-2005 07:38 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Nelie, I suggest that you wait until your mouth heals and use the PEG for nutrition. I know you are probably sick of it, but with a sore mouth, you are not going to get much down, and it will not be fun. And what you do get down probably will have no or little taste. When your mouth heals a bit, soft things like ice cream and Jell-O and even oatmeal will go down easy. I used to make thin milkshakes. Truthfully, until I had some taste, I didn'tmuch bother with oral feeding. It was just too frustrating. I think by just continuing to rinse my mouth and then letting it alone, it healed faster. Hang in there! | | |
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