#54464 03-06-2004 01:29 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Well, I'm back from 10 days of shear hell & tortue riddled with love, caring, family, friends - some new, some old. Also, I'm amazed & apalled with the nursing staff at my favorite little tortue chamber. Very mixed feelings, just in case I was vague at all. Damn glad to be home. Much bigger heart, half a tongue, 10 pounds lighter & TIRED!!! Blah, blah, blah!!! Glad to back on the boards. Welcome to any & all the newcomers. You'll find a lot of love & info here. Hello to all the regulars & I truly hope all is well or getting better!
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#54465 03-06-2004 01:49 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Glad to hear from you Erik,
Beleive me "It gets Better"!!!!! Now the healing begins. Are you able to eat or do you have a PEG tube? Take in plenty of nurishment as your body needs extra to heal. Any question's please post as someone seems to always have an answer. Input allot of H2o, Gatorade etc. Nice to hear you made it through the worst part.
Best Wishes, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#54466 03-06-2004 02:09 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Hi Dan! got peg tube but constipation keeps me afraid to overeat, I feel sooo fuuuul! I know I need to eat 'cause I'm down to 200, I normally run about 220-225. Not feeling all that well physically. Mentally, ok
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#54467 03-06-2004 02:25 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Erik,
So glad you are home...know all about the goods/bads of nursing staff...had mostly good and a few really bad ones. Dan had a PEG tube put in when he began chemo/rad about 8 weeks ago. He started using it totally about 5 weeks ago. He also had MUCH trouble with constipation and fullness...had to get more meds for that. Be sure & ask...they gave Dan Lactolose in a syrup for his tube. He also has Protonix for reflux that I crush up to put in his tube. Tomorrow is his last treatment...sure looking forward to the path of recovery...trying to take it one day at a time. Also, they finally prescribed Reglan for Dan to put in his PEG to help him with the full feeling. It gave him some diarrhea, but we used a little less and it did help him take in a bit more food thru the ole tube.
Take care and hang in there, Erik, I have added you to my daily prayers. May God give you strength as you heal.
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#54468 03-06-2004 06:58 PM | Joined: Feb 2004 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 45 | Hi Erik...
Glag to hear from you! I'm glad you are home and now can begin to heal. Hope all is well with your family. I'm sure they are giving you good care.
Khaja
Khaja
SCC Base of Tongue Stage IV. Diagnosed 12/02
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#54469 03-07-2004 02:53 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Hi Erik,
Glad you are home. I know the first few days I was home I was so elated, when anyone asked how I was? I AM HOME! was the answer. If anyone called? I'M HOME!
Hang in there, Erik. You've made it through some awful stuff, celebrate that.
Sincerely,
Lisa
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#54470 03-07-2004 03:28 AM | Joined: Mar 2004 Posts: 24 Member | | Member
Joined: Mar 2004 Posts: 24 | Hi Eric
welcome home. enjoy being home,use the board for information and start healing | | |
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