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#53813 08-26-2006 05:10 PM
Joined: Jul 2006
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Does anyone know Mannatech? They are like a vitamin/supplement line. Has anyone tried this? Just wondering,thanks.


karen and dad
#53814 08-27-2006 08:59 AM
Joined: Nov 2002
Posts: 3,552
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Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#53815 08-28-2006 05:57 PM
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CRAP! I'm out 2000.00! Watch out I have been duped into buying tons of this trying to save my dad. They really talk the talk. Well we won't be doing that again. Thanks for the quackwatch site Gary. It is so easy to be scammed because I'm hoping for any kind of miracle.
Aren't we all?


karen and dad
#53816 08-31-2006 03:03 AM
Joined: Dec 2003
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Karen,

As a general rule, avoid anything that asks for 2000 bucks. The premise of their two major "discoveries" are things that we are all taught: eat your veggies and balance your electrolytes. There are more concentrated ways to ingest the plant nutrients we need (i.e. phytonutrients). For example, health food stores sell a lot of powdered "greens" that are concentrated antioxidants made the same as Mannatech products only much more cost effective. They make great additions to protein shakes and you don't have to eat a ton of brocolli to get the same nutritional value. Make sure your dad drinks lots of water or even gatorade and his electrolytes will maintain more balance between lab tests. Also, make sure the lab work is closely monitored by you just in case someone gets too busy to call you or your dad. Ask for copies and look for trends. Ask all the questions you need to feel comfortable with the massive amounts of data coming your way.

I bought one of the best juicers available today because I juiced a lot in the past. I spent about as much money as you did, by the way. After radiation, my mouth can no longer tolerate the fresh juices like before and the taste and sensation are less than desirable so there it sits. I learned to avoid any expenses without hearing from a lot of people that it would greatly benefit me.

Another example, I have a "few" boxes of Glutosolve that I believe is a good product and was recommended by the dietician/nutrionist on my medical team. It is supposed to promote faster regrowth of epitheleal cells that should help resolve stomatitis from chemo especially. During my nausea phase (read that as violent vomitting) I just happened to have a bad experience shortly after drinking some Ensure with this stuff and I still don't like to even look at a can of Ensure or a pack of Glutosolve because of the memory even 3 years later.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#53817 08-31-2006 04:33 AM
Joined: Feb 2005
Posts: 2,019
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Ed, I have an expensive juicer (though not quite 2K worth of expense) I don't use so much anymore either......


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#53818 08-31-2006 07:00 PM
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I have nothing but contempt for companies that make their living promoting worthless, untested (and sometimes dangerous) products on vulnerable persons and giving them false hope. I hope that there is a special place in hell for the persons and executives who make these kinds of decisions and criminal behaviour. It is ILLEGAL to promote a drug or substance "intended to alter the structure of the body" without FDA approval. Period. Report these people to the FDA, send copies of their claims. GNC for instance has had numerous injunctions and other regulatory actions taken against it. Do not patronize these snake oil salesmen.

I have a real nice Alpine Industries Ozone generator/air purifier (from the first run when the ozone levels could actually be toxic before they ran into problems with the FDA) I'll make you a good deal - I paid almost a grand for that thing -from a gal in my bible study group who was into the multilevel marketing thing, also selling "Natures Sunshine". The latest scam that someone threw at me for "chemoprevention" was Noni juice, also well known to Quackwatch. I pointed this out to her and she just patently ignored me like she was from some kind of cult. The people actually selling this stuff are brainwashed drones. It is a classic example of compartmentalized and institutional evil as well described in M Scott Pecks book "The People Of The Lie".

Disclaimer: The opinions contained within may not reflect the position of the OCF and I take personal responsibility for them.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#53819 09-01-2006 09:11 AM
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OCF Founder
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Gary, the disclaimer for the foundation's benefit was not necessary. I and the foundation share your perpspectives.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#53820 09-17-2006 08:08 AM
Joined: Aug 2002
Posts: 246
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Nothing wrong with a plain old multivitamin.

What happened to the good old days?

KCC


kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"

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