#5047 02-22-2005 04:13 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Eric,
Thanks for sharing such good news!! I'm happy for both you and your wife.
As for the baby I hope the courts do the right thing and let you proceed with the adoption. What 17 year old kid knows anything about raising a child the proper way? Not many I know.
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#5048 03-30-2005 04:25 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Hey friends, just a quick update -- I got on the scales the other day and to my surprise, I weighed in at 158 pounds... Considering I had dipped below 130 last fall, I think I'm doing pretty well... Actually now I have to worry about gaining too much back (I'm only 5-9 so my weight is about right at 160 - I was over 190 before cancer)... No more nightly ice cream, however... I had gotten quite addicted to coffee flavored...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#5049 03-31-2005 01:35 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | This is good news...sort of. I'm at somewhat the same stage as I'm now at 168 (+/-) and watching my intake. No more 2x McDon double cheeseburgers at a time. Can only eat one, now. Glad to read there are others in the denial stage.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#5050 03-31-2005 12:40 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Hey, Eric! So good to hear from you again! I'm getting back into visiting the board more often as I found I missed it....and when Tom starts feeling blue, I need to read what is going on in everyone's life to cheer me up  The Weight Gain sounds AWESOME! I can happily say that Tom is up to 142 from his low of 127, but heis relying on the tube for 99% of his nutrition. He chokes on most things he eats, and if he can get things down, it takes him so long to eat that he gets bored and CRANKY! the doc told him to be patient (but he forgot to whom he was addressing that order)! GET YOUR REST!!! The cancer will LOVE it if you let yourself get run down! Keep that immune system strong --especially until you have the external stress factors raging! Loved seeing your posts again! Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#5051 03-31-2005 03:23 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Nicki,
One way to eliminate boredom is to take a magazine or newspaper to the table. It takes us cancer survivors a long time to ingest a small amount of food, especially early on. Reading or doing some other activity at the same time allows us to not concentrate on the fact we can't eat at the same rate we used to.
Do not expect us to be conversationalists over dinner. Lots of liquids like water and milk help to get food down. Also, try not to eat serve large portions of anything. It only frustrates us. Very small meals many times a day are easier to handle until the damage from the radiation heals. Make certain is checked for thrush. No white stuff allowed if he has thrush.
Hope that helps.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#5052 03-31-2005 11:58 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Eileen,
Your comment about not expecting us to be conversationalists during a meal meade me smile. It never fails that as soon as I have something in my mouth, somebody asks me a question! Most people don't understand that, at least for me, eating takes a LOT of concentration in swallowing the food and the liquid (water) chaser just the right way so that I don't choke. Thanks!
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#5053 04-01-2005 01:35 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Eileen and Nancy,
You're right on about the slow eating issue and ways to deal with it. While my pace of eating has picked up a bit, I'm still finding after 16 years that I'm always the slowest eater in a group, and the people who know me well understand that conversation (on my part) doesn't go well with food.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#5054 04-01-2005 05:50 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi all, I have the same eating problem. I find if I am alone in the room that it picks up a bit. But,than I'm on baby food and that helps me a lot. I can't chew meat at all but, the baby beef is lovely. As far as eating out I don't. I'm the same year as Cathy G almost. Have a good day. Cathy 
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#5055 04-03-2005 03:46 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | I have the same problem with slow eating. At home my wife and son are done eating and I'm lucky if i'm half done. I re-warm my food in the microwave at least twice.
When we went out for a steak last night I asked the waitress to hold the main entra order for ten to fifeen minutes so I could have time to enjoy the salad bar. Just part of my new life I guess.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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