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#50458 11-12-2007 03:42 AM
Joined: May 2007
Posts: 621
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 621
Contagious cancers
The Boston Globe Contagious Cancer


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
#50459 11-12-2007 03:37 PM
Joined: Mar 2002
Posts: 4,751
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OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,751
Likes: 1
Thanks for noticing, but these interviews happen all the time and I really don't have any profound insights in most of them. Today I was interviewed by USA Today, which will appear next week. Sometimes they ask the right questions and you can get something out that might make a difference, sometimes it is just my cancer journey story which is not much different than anyone else's. Most of the time the writers have the story (right or wrong) in their mind that they wish to tell, and anything that I can say to move it in a more productive directon is in vain. I quit counting at 55 interviews in the print media or on TV. Truth be told, I am just not that interesting.... and I am certainly way too unattractive to be on TV as much as I am. Bottom line - you keep trying to get the message out there every opportunity that you can.

Here's the take away from all this. Each of you has a story to tell. Personal battles, HPV angle, and more. If you contact the medical reporter at your local paper or TV station, I bet many of you will find yourselves in the mix of it all, telling the early detection story and helping change the world. Anyone that wants help with talking points etc. just contact me if you find an opportunity.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#50460 11-14-2007 11:33 AM
Joined: Apr 2004
Posts: 837
"Above & Beyond" Member (300+ posts)
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"Above & Beyond" Member (300+ posts)

Joined: Apr 2004
Posts: 837
The Globe story was very well-positioned in the print edition -- lead article (with full-color graphics) on the front page of the Health/Science section. Really attention-grabbing.

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
#50461 11-21-2007 12:16 AM
Joined: Apr 2007
Posts: 64
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Apr 2007
Posts: 64
I find this extremely interesting, for myself I contracted a terrible virus that a relative brought back from a cruise trip, worst virus and ultimate sinus infection I have ever experienced and a year later I found a lump in my mouth that turned out to be salivary gland cancer. When I asked my oncoligist how long I had been dealing with the cancer, he said, he thought it had started about 1 year ago. I really believe it began with the infection! I can find no other reason!


Adele,
mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,
11/07 surgical biopsy of lymph node left neck, no cancer!

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