Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#50111 10-28-2006 05:53 AM
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Brian,

Thought I should post here instead of General.

I did post your web site in the other work site I told you about in my Email.

I asked that they share that information with their Dentist as well. We are a tight work group even if some of us are retired. I know that they will pass on the informaton and take to other web sites.

I will repost every year so that it is there as a reminder for the New Hires.

I will continue to try and come up with ways of getting the information passed on about OCF. laugh

Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#50112 10-28-2006 10:10 AM
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Brian,

I also have not heard from the paper. I will let ya know when I do.

Also sent you few more OCF symbol ideas... Not really sure if that is what you have in mind or not.

I wish I could put them out there for others to see and get feed back. To hard to discribe.

take care
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#50113 11-16-2006 04:07 PM
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Brian,

Just so you know, I met with local paper today. They are going to Run the story about Oral Cancer. They were very interested. I told them I wanted it to show Web site address and the main idea here was getting word out and early detection.

I have never done anything like this before.!! So, I guess you know that I think this is very important.

Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#50114 12-07-2006 03:36 PM
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Brian,

Well my local paper did a story about me and included the information about OCF. It came out today.

I thought it was just going to be a short story.

OH no she did a complete layout about Christmas and me, which included the web site of OCF. Well, at least it was getting the word out. She did put the web site in Bold and big print as I had asked. Maybe it will reach someone in need. That is what I hope for.

Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#50115 12-07-2006 03:43 PM
Joined: Sep 2006
Posts: 493
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Sep 2006
Posts: 493
Do you have a link for the story?


Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
#50116 12-07-2006 03:45 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
It occurs to me that rather than trying to find a symbol, now you are a symbol for OCF, Diane- a symbol of sharing and caring that people are made aware of this disease. Good for you! Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#50117 12-07-2006 07:44 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
I would really like you to mail me a copy of it for the OCF archives. We have one of everything that has been published so far. One day when we have a real office and walls and all that.... They will all be up there framed to memorialize the journey. The little beginning stories, the members personal triumphs, the signed photographs from celebrities that have helped us... one day. The most important are not the OCF stories, they are the ones of someone's personal journey, and the privilege that OCF had of being a small part of it. I


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#50118 12-11-2006 09:07 AM
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Brian,

I will send you a copy. It is not anything that I first wrote. She (the reporter) did her own interview and took it from there. I did not get to see the final before it went printed.

It is a local paper that puts in a flier type insert once a month. That is where the article was placed. Human interest story.
I was surprised at some of the personal information of how I met my husband. I did not think that was going to be printed. shocked

Tim, there is not a link that I am aware of.
Amy, Thank you for your compliment. I only wanted to try and help in some small way. NOT MAKING FRONT PAGE NEWS OF PERSONAL LIFE!

Well thats the media for ya... Ha ha..
Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#50119 12-30-2006 07:12 AM
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Brian,

Just was wondering if you received the Article OK? Hope it met with your approval as far as information of OCF.

Happy New Year To ALL !! smile

Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#50120 12-30-2006 09:45 AM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
You did good, considering the reporter was all over the place and not very organized. The parts you did were great.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Page 1 of 2 1 2

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5