#47719 03-02-2007 03:21 AM | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2007 Posts: 61 | The plan was my first 5 weeks of radiation were to focus on the right tonsil area and all draining lymph using IMRT. Then I would receive 2 weeks of radiation focused on the tonsil.
I went 3 days my first week (Wed-Fri) then the next week I went 3 days (Mon-Wed). On Thurday the IMRT machine broke and I missed that day. Today, Friday, I would have gone in despite a snowstorm, but the machine is still down. I know I will have to add the two days to the end, but I'm wondering if this interruption has compromised my treatment.
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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#47720 03-02-2007 05:38 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | When my son was in the IMRT treatment phase, he was given a week long break after about two and a half weeks because of open painful sores in his mouth, and again later on a slightly longer break because of Christmas shut down of the Radiation office where everyone had a short break. In talking to other patients while waiting for him I found out there were other patients who had to have a "break" from treatment. To be sure regarding your own treatment, it may be a good idea to check with your doctor and ask him about any effects of the interruption in treatment.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#47721 03-02-2007 06:22 AM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 | I was told by my doctors that the "best possible" outcome had no interuptions. I would investigate the best ways to make up the time.
Rob J
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
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#47722 03-02-2007 06:59 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Simple Gifts,
Your radiation oncologist should determine how critical this is in light of your treatment plan and where you are in the process. There were a couple of times fairly late in my treatment when I was truly miserable and begged for a day or two off. On one such occasion, my RO said it would be OK, but on another one, he said I absolutely needed to push ahead and not miss any more time.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#47723 03-02-2007 03:26 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I missed 2 days because I was too sick from the chemo and several more days because of downtime of the machine. There is no way to make up the time. You can't get more then 2 Gy/day. They will just add more days. They were more pushy about the days that were my fault then the days that the machine was broken. Go figure. Others here have had small breaks with no adverse effects (and some because of adverse effects).
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#47724 03-03-2007 04:48 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I was fortunate or unfortunate to not have missed any days. I was warned before I started that the machine might break down but other than that my RO told me he did not want me to miss 1 day for illness.
During my last week of rad I was in the hospital due to severe dehydration and nausea and they even nuked me then. They wheeled me down in a wheel chair, nuked me and wheeled me back to my room. And I thought I was there to make me feel better....oh well.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#47725 03-03-2007 08:43 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | I didn't get any slack either, like David. I was hospitalized during week 5 for nausea, and they wheeled my bed down, transferred me from bed to table, nuked me, back on the bed and back to my room.
That week it really didn't matter a lot...there was nothing they could do to make me feel worse than I did anyway.
Wayne (who is enjoying the ability to chew things again!)
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#47726 03-03-2007 03:16 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | The most important issue here is that you complete treatment. If you have 35 scheduled radiation visits, then you must complete all 35. It is a sequential treatment but missing a day or two shouldn't make a difference. Patients not completing the treatment protocol have poorer survival odds in general.
The machines are VERY busy and often are run for 2 shifts every day at many treatment centers, one can only imagine the logistical nightmare if too many patients were rescheduling. A day or 2 of downtime can really mess up their schedules as well. When I worked for Siemens we scheduled all maintenance, repairs and upgrades after hours and on weekends, unless the machine was inoperable or in a dangerous condition.
I want to make clear this applies mainly to the frontline treatment, i.e. radiation. Chemo is given as an adjunct and sometimes chemo protocols are changed or shortened without adverse effects or conversely, due to adverse effects.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#47727 03-03-2007 11:24 PM | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2007 Posts: 61 | Thanks for all your replies. After just 6 treatments, I was beginning to lose my taste and was going to bed at 7:30PM. I've enjoyed every minute of feeling great over the weekend. We grilled steaks last night and that's a rarity for me since I don't eat much red meat. I figured it was a chance to squeeze in some extra pleasures. Driving 250 miles to visit my mom in assisted living today. I'm determined not to tell her, so the broken machine let me squeeze in another visit. I'll hopefully get back on the treatment track on Monday.
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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#47728 03-06-2007 02:25 AM | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2007 Posts: 61 | On Monday, I went and the machine broke again. That means I
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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