#45101 07-05-2005 10:40 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
Just got home from my chemo session and getting the results of my scans.
I wish I had good news to report but the scans shows a reccurance of a 3.3cm tumor on the right tonsil. This is a new tumor since the last scans in December.
There are no options other than changing the chemo drugs and try and slow it down. The new drugs are Cytoxan (t) and Taxotere. The Cytoxan
will be inputted every three weeks and the Taxotere will be two weeks on and two weeks off.
At some point I will be unable to eat or drink. It may be six months , a year or god only knows.
I have more to add but I'm kind of in shock even though I knew deep in my heart something was changing in my throat.
I also wanted to Thank all the members who emailed me and posted words of support. It meant more to me than I can express in a email. I've made so many friends on this site that I can never forget them. It really is a tight band of brothers!!! I love each and every one of you.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#45102 07-05-2005 10:55 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Danny Boy, I love you dearly and am here for you. I will pray that the new chemo drug kills the tumor. God Bless, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#45103 07-05-2005 11:13 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Danny
You and your family are in my heart. I'm hoping the change of drugs will help you.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#45104 07-05-2005 11:25 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Oh Danny I was praying so hard for a good report. Well I will just keep praying then. Know that you are loved and surrounded by Angels where ever you go.
Praying for you and lighting the candle of Gods gift of peace and understanding that exceeds human comprehension,
Barbara~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#45105 07-05-2005 11:31 AM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Ah, Danny. Sh*t. Sorry, I don't know what else to say...I send you all of my love, buddy. Let me know if there's anything I can do. You're in my thoughts.
Dave
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#45106 07-05-2005 11:33 AM | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | Danny,
My thoughts and prayers are with you. Please stay strong.
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
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#45107 07-05-2005 11:36 AM | Joined: Jun 2005 Posts: 53 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2005 Posts: 53 | Dear Danny:
I'm fairly new to the board - just gathering info for my sister who is going through all this. I just wanted you to know that I've been amazed as I read through various posts at how willing you are to share info and how much you lift up other people on this board. You are truly an inspiration to me that no matter what you're going through, you can still be so willing to help others! I'm so, so sorry that the news wasn't better from your scans. I've been praying for you and will continue to keep you in my prayers.
Robin
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#45108 07-05-2005 11:37 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Danny Boy
Go for it big time, never regret that you never tried..
Sunshine...love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#45109 07-05-2005 11:44 AM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2004 Posts: 188 Likes: 1 | Danny,
I've been sitting here for a half hour trying to think of something to say, and I'm just stunned. I'm sure I don't have to tell you how much I hate this damned disease!
You and your family will be in our prayers. Here's hoping the new drugs will be more effective.
Love ya Danny!
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun.
It's always something
"Adversity doesn't build character, it reveals it."
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#45110 07-05-2005 12:18 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Oh Danny.. my heart bleeds for you and your family, you have been through so much.
I know it`s hard Danny but please try to keep that good, positive ,
" I`m going to beat this Bastard of a disease " attitude that you have always had.
You are so important to each and every one of your friends here and we love you!
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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