#41830 09-23-2007 09:05 PM | Joined: Jan 2007 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jan 2007 Posts: 40 | Hello, Thanks to everyone for your imput following my earlier questions. I am due back at the hospital tomorrow, to discuss (albeit) limited options, re chemo, etc.
I wondered if anyone had any thoughts about these questions I have for my doctors.I know you may all think I am clutching at straws, but hell why not?!
Given that I appear to be symptom free (although my shoulders are now very tense and I panic at every twinge in case it's on the march) should I ask for a biopsy or would this just be a) putting myself through pain and hope for no gain and b) cause it to spread faster? Since the surgeon, oncologist and radiologist have all looked at the CT scan (6months post treatment) would a second opinion on the results be pointless? What can I expect them to tell me after the chest xray they took last week, (after breaking the news)? Doeas anyone have any information about radiosurgery used for lung mets? I have read about a hospital in NY (?) and if there was any point, I could, if fit enough, travel. Please accept my apologies if I am asking too much, but I am just canvassing opinion before seeing the doctors. I only had about 10 minutes with them last week and there was so much to deal with, as you can imagine. Thank you! | | |
#41831 09-23-2007 10:08 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Hi Georgia,
My heart goes out to you having to face this. I am also at the hospital today for my second CT scan--last one was in June when they discovered that it's in my lung (also in 2 places) and I also have lesions on my liver. I also had no chest/back/shoulder problems and 3 months on, still don't--although last week did have a bad bout of pain---which turned out to be wind! My last chest X-Ray showed that the lung tumour hasn't shrunk, but hasn't grown either, so the chemo gave a 'good' result for the time being--with minimal side-effects. I didn't have a lung biopsy, but had had one on my jaw as it was that which had the problems. I know none of this answers your questions, I guess only the docs can and I hope you get some hopeful news today. Will be thinking of you whilst I'm in the 'polo mint'!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#41832 09-23-2007 10:09 PM | Joined: Jan 2007 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jan 2007 Posts: 40 | Oops, 'input' not 'imput'! | | |
#41833 09-23-2007 10:23 PM | Joined: Jan 2007 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jan 2007 Posts: 40 | Thanks Brenda, Hate that old polo mint don't you?! I will be thinking of you too. Docs tomorrow for more sighing and hopelessness (theirs)I suspect, although I am keen to hear any sliver of something to give me a focus. Great to hear about the chemo having positive effects and not so many of the bad effects. although of course I wish that you hadn't had to deal with this. I have read your blog/gob! and have long admired your humour, courage and the support you offer to others. Thank you so much. | | |
#41834 09-24-2007 01:08 AM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 | Georgia,
I was treated at Beth Israel in NY and am able to reach my docs quickly. If that is the CCC that you are speaking about, I can get you to them quickly. Let me know if there is anything to pass along to them.
Regards, Rob J.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
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#41835 09-24-2007 10:42 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Georgia, I had several bronchospies after an incidence of unexplained bleeding from the lungs in 2004 and the CT scan didn't produce any cause for the problem. They would have done a biospy at that time if they thought it was necessary. A properly done biospy should not cause it to spread faster(I'm not in the medical field). I had a surgical biospy on both my cancers prior to diagnosis. A look-see might tell them more. Second opinion never hurts.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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