I am curious about medications and solutions for Mucus. Just completed 35 session in 6 weeks with 2 - cysplatin. Mouth sores and mucus ae terrible for him. He has spent the last 3 days gagging and throwing up because of the mucus. He is Tussinex and Solomine Patch. Today they gave him RX for antiven to control gagging. But the mucus is horrible. His throat is bleeding because of the throwin up. He does rinse with Salt and Soda mixture 5 times a day. but even right after he finishes the mucus is already building. He cannot swallow. Rad iation took that away..

He is also in severe pain. Currently on 2 25mg Fetynol patches and supplement with Roxicet. He has been so fuzzy with these pain meds. He is constantly moving his hands while sleeping reaching for things. Does not realize the day or time of day it is.

He has PEG but was uphill battle because of his pride. we are using the Carnation HC 560 a can 8oz.

I feel so helpless for him. He is a very proud and independent man. He feels he should be on his way up and we just finished treatment past Friday. The told us 2-4 weeks. But he is more exhausted then he ever has been through this.

He has been very emotional the last 3 days and also completly out of it in some ways. Is this normal and any help with the mucus for him would be so appreciated.

Hello T in FL

We are sorry to hear Marcus

The 2-3 weeks after treatment is the worst part. We have all had similar experiences. You are sure that you're throwing up your toenails it is so bad. The mucus is so bad that I was spitting and throwing up for about 3 weeks. Just after the 15th day I started to see a small turn. It is just enough to begin to raise your spirits. From that point on it was baby steps every day.

The mental part was very tough for me. It is totally demoralizing and frustrating. You want to be done, but the recovery is really just beginning. Just know that it will get better and will soon see huge advances. I also had horrible insomnia for a couple of weeks. Good luck and take ativan and Lunesta when needed. Don't fight it. Understand that it is part of the process.

Rob

Most people here will say that 2-3 weeks post tx was the worst and I agree. It seems to be the norm. I'm 3 months post tx and I am just starting to eat solids at supper time. My taste buds are just starting to be a little normal. I still have very little saliva. My neck, tongue, and jaw are actually still tightening. What he is going through seems fairly normal, but you need to be sure to keep your dr.s informed of his condition. With throwing up comes malnutrition and dehydration and with open soars and bleeding comes infections. Make sure the doc's know and let him know there is a light at the end of the tunnel. It will be real tough then he'll feel a tiny bit better and his spirits will come up. I had a second tough time after the first one but I attribute that to withdrawals from the pain meds. Just hang in there and keep him hydrated. He may at some point need fluids if all this persists. Good Luck

David ended up in Hospital last week Tuesday - Friday. He became disoriented (extremely) and was dehydrated. The medications then they had him on just made everything worse. His Body trying to fight cancer, Fight the Radiation after effects, and mentally still now competly accepting of the Peg tube, and not wanting to take pain medications to control pain.

A combination of Dehydration and medications has him on a better path hopefully. Also he hopefully understands (May not Like it but understands) that Feeding and taking water through the PEG is a huge part of his survival as is managing symtonps before being out ofcontrol. Make sure you are very comfortable with any and all side effects of medications your doctors give.

He is much better and thank god at home. He is back on the good patient list. Many times he ays I do not understand however, I see the pain in his eyes and his face, I see the burned oozing tissues on his neck, I see the look of how did I get to be someone who is fed through a tube by someone.

Upon discharge theysent him home with a nebulizer and machine that is portable to extract the mucus for his mouth. When they brought this into his room in the hopsital it was the brightest his eyes have been in weeks and weeks. Any of you with extreme mucus issue should request you doctor to get with Home Health provide to set you up. This has been so rejuvenating for him/