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#41357 06-10-2007 08:46 AM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 | I am just finding out that my cancer has returned. Actually, the biopsy isnt till Wed but a top surgeon has felt it & a radiologist. They both feel something & "something" was spotted on a recent CT. I was never "cleared" of cancer cuz I was always too swollen to get a good read. So first off, I would appreciate and love any prayers that they're all wrong & this isn't cancer. The CT said possible necrosis but I wasn't swollen right after therapy like I am now. Does anyone have swelling from necrosis? Has anyone had recurrence? I need help!!!!
I need to be realistic tho & if it is cancer, I would have to have surgery this time. My "spot" is about an inch big & goes from the middle of my left side of tongue back towards the base. Doesn't cross the midline. Has anyone had suregy in this spot? No nodes detected. Thank God. Lungs clear, too. WIll I ever talk or eat again?? What is recovery?
I've already been thru rad & chemo as you can see from my signature (that I FINALLY filled in). I am devastated & I can't believe this is happening. My girl turns 2 next week & instead of holding a bday party, I may be having surgery.
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#41358 06-10-2007 08:50 AM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 | oh, and thanks for all of your help!
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#41359 06-10-2007 09:13 AM | Joined: May 2007 Posts: 24 Member | | Member
Joined: May 2007 Posts: 24 | HI JORDAN
I KNOW IT IS HARD ESPECIALLY WHEN YOU HAVE KIDS.
I WAS GOING TO ASK YOU ARE YOU STILL ON THE PEG?
THEY MIGHT PUT ME ON MORE CALORIES SINCE I HAVE BEEN LOOSING WEIGHT. I PRAY THE CANCER HAS NOT COME BACK. I AM IN REMISSION I THOUGHT I WAS YOUNG BUT YOU ARE REALLY YOUNG. I HOPE YOUR HUSBAND HAS BEEN SUPORTIVE THAT HELPS. PLEASE KEEP US INFORMED IF IT HAS RETURNED
GOD BLESS
KATRINA
SCC T3N1 right side tongue DX7/24/06 44 yrs old
Tx 42 IMRT started 9/01/06 Cysplatin & 5fu 2x treatment ended 10/31/06. Partial neck discection 3/07 on right side.
Had tracheostomy 4/08. Had total Laryngectomy 6/09
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#41360 06-10-2007 09:28 AM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 | Yes. I am still on PEG. I upped my calories cuz I was losing weight. Trying to take over 2500 cals a day. Yes, my husband is extremely supportive. Thanks.
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#41361 06-10-2007 10:12 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Every time this happens my heart sinks.first shar and now you!!I will pray with every thing i have for good news Jordan,please try and stay strong until you know for definate.You are so young and have so much to live for dont loose sght of that ever and listen to what the Doctors have to say very carefully so that you know exactly what you are dealing with.The war isnt lost you just have anew battle to fight.
God Bless and Good Luck
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#41362 06-10-2007 12:16 PM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 |
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#41363 06-10-2007 04:15 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Jordan
I walk with you in this tunnel of fear...They have found a lump in my jaw..and i am having more test a fine slice ct then a pet and then a biopsy ..mine as well was supose to be gone and all over with, I just recently went to a new surgeon..I dont know what is true anymore but he told me that in cases like ours..Young with no real risk factors( specailly tobacco) that this is a more agressive form and more chances for reccuraance,what truth that has I dont know but lets hope in both are cases it is far from the truth , I have my CT tomorrow and mt Pet tues,,I hope that we both walk out of this togther and cancer free !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#41364 06-11-2007 08:34 AM | Joined: Jan 2007 Posts: 6 Member | | Member
Joined: Jan 2007 Posts: 6 | Shar-
How did the CT go. Email me. | | |
#41365 06-11-2007 08:35 AM | Joined: Jan 2007 Posts: 6 Member | | Member
Joined: Jan 2007 Posts: 6 | Shar-
I just posted under mazey cuz im on a different computer. it was me, Jordan. | | |
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