#41074 04-29-2007 01:09 PM | Joined: Mar 2007 Posts: 21 Member | OP Member Joined: Mar 2007 Posts: 21 | Hi everyone,
I have just 7 more radiation treatments and 1 chemo and I am done with this torture. Right now my mouth is producing non-stop mucus which is causing me to gag, dry heave, barf etc.. It is also interfering with my sleep big time. I am lucky to be able to sleep 20 minutes before waking up choking my but off. Anyone that has been through this can understand how much it hurts to dry heave with a throat that is continuously on fire from the radiation.
A nurse at the hospital suggested I take Mucinex to help loosen the mucus and flem from my lungs and throat. It seems that all this does is create more or at least thinner mucus. Certainly has not relieved it. Other than that, I walk around with my salt/baking soda rinse.
Does anyone have any other suggestions for Me?
Thank you
Jon | | |
#41075 04-29-2007 04:12 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | Jon; Been there, Done that!! My RO prescribed me a formula (Miles Mixture), but the salt/Baking Soda rinse you reference was the best suggestion I received. I did get to the point in treatment where I couldn't even stand that in my mouth from the "roasting". With only 7 more treatments to go you will see an improvement fairly quick after you finish, so keep rinsing all you can. There's light at the end. Just hang in there....
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#41076 04-29-2007 07:34 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Roll with it. It's all you can do. In my personal experience Steve is a little over-optomistic. It was several weeks post Tx that I noticed the slightest pereceptible positive improvement and for a while after that the improvements ocurred in what seemed like 3 week increments. I threw up so much that the acid polished my teeth like glass - and I still survived!
The good news is it WILL pass.
There have been many discussions on this problem since we all went through it. Do a search on "mucous".
One day, magically, the thick stringy mucous just stopped.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#41077 04-30-2007 01:38 AM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 | Jon,
Now you know what we've all been talking about. I spit for weeks, then magically one evening while putting my boys (kids) to sleep, I noticed that I hadn't spit in an hour. "I must have been able to swallow" for the first time in weeks. At that point I had to retrain myself to swallow again. From that point I was psychologically and physically rolling. I carried a spitting cup with tissues on the bottom to soak-up the "good" stuff. I also carried throw-up bags. Zip lock bags to toss one whenever you might need to. You're about to enter the toughest 3-4 weeks of your life. Keep up with your pain meds, your stool softeners, and your phone calls. Were all with you for support. All my best to my buddy.
Rob
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
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#41078 04-30-2007 02:06 AM | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Feb 2007 Posts: 61 | I stopped radiation two weeks ago and the only side effects I have are fatigue, taste, and the need to constantly spit. I found sleeping with two pillows helps at night (keep head propped), sleeping with a humidifier, and rinsing my mouth with club soda helps. I go through a lot of club soda especially first thing in the morning. I haven't figured out if Mucinex works for me. I take it on the rare days I'll be out of the house and can't freely spit. It is slowly getting better.
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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#41079 04-30-2007 03:08 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | robs three weeks post tx just about ,and his gunk is still flowing freely
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#41080 04-30-2007 04:44 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Jon,
It goes with the territory. I kept a cup with me everywhere I went including one on my nightstand. Yes I would wake up unable to breath and sometimes I wouldn't even make the 10 feet to the bathroom to "polish my teeth" as Gary so eloquently put it. Nothing worked for me and as others have said one day it just stops and it never comes back.
Good news is about 3 weeks post Tx and you WILL feel like a new man. Two weeks post Tx and you will be calling me a liar but trust me the end is only a month away so hang tough for the last uphill mile.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#41081 04-30-2007 01:55 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | The suction machine helped keep John more comfortable. He also used Rincinol, Alkolol,Musinex and Guaifenesin. You might also inquire about Hyoscyamine tablets or liquid. Good Luck. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#41082 05-09-2007 02:59 PM | Joined: Mar 2007 Posts: 21 Member | OP Member Joined: Mar 2007 Posts: 21 | Thanks for all of you advice! Didn't really learn anything new, but you neve know. Never thought the end would come. 33 treatments ranks right up their with animal cruelety as far as I am concern.
Jon | | |
#41083 05-10-2007 05:49 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Jon,
It is barbaric to say the least. I think it ranks right up there with prison camp torture as seen in some dark movies only ours lasts a whole lot longer and it's much more expensive. The majority of us had it so we know exactly what you've been through. Once you get past week 2 or 3 post Tx you officially walk out of that dark tunnel and you will feel like a totally different person.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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