#40942 04-11-2007 04:29 AM | Joined: Jan 2007 Posts: 22 Member | OP Member Joined: Jan 2007 Posts: 22 | My husband had the PEG put in a week ago Friday. He is basically unable to swallow anything except pure liquids. We have used all types of nausea medicines, but he is still sick to his stomach. He has had some pain in the area around the PEG and they did a dye test to see if there was a problem with the PEG yesterday. All was fine. He had had no liquid or feedings since the night before the dye test. I tried to give him 1 1/2 cans Nutren 1.5. He is to have two cans four times a day. We use the drip/IV method. After 1 can I tried to push the ground medication in the tube and it wouldn't go. I used a pill crusher and warm water to put it through a syringe. I waited over five hours and could suck the contents out and return it, but still could hardly get 30 ml of water down. If I tried to push the water hard it would push the syringe out and squirt the water everywhere. Waited until this morning and still his stomach contents filled the tube. We are going to see the nutrionalst today. They are talking about Raglin to empty the stomach faster. They are also talking about a 24 hour pump. My husband is 6' 5 1/2" and used to weigh 230 lbs, he is down to 206 and if we can't get nutriton in how can he fight this damn disease? I realy thought the PEG would end the food crisis. I spent so much time suggesting different things to swallow, he would look like he was going to throw up or just say no. We are in the last week of radiation(twice a day) so there is a light at the end of the tunnel. I would love ideas on these problems. Thanks
social drinker, smoked one cigar a week last three years.
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#40943 04-11-2007 04:59 AM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2007 Posts: 108 | Hi DCS,
Sounds like a difficult problem. I found that if I ever let the stomach get to empty, it also contributed to the nausea. I fed myself 7 cans of ensure with about the same amount of water about 3 hours apart all day. I used a gravity feed because it was a lot easier. I just took the plunger out of the surenge and used a measuring cup to pour the liquids in the surenge slowly as it drained into the stomach.
From what you are experiencing, it sounds as if the PEG tube is obstructed somehow. The nutritionist may not be able to help with this aspect. May need to go to a Gastrointerologist to have it checked.
You are right on the money though that nutrition is the most important aspect of fighting cancer and it's treatment. Keep working with your doctors until you can get nutrition in regularly.
Keep fighting and take care! Jim
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
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#40944 04-11-2007 10:21 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | That's exactly what Reglan is for - to keep things moving. Constipation can also stop homeostatsis (the medical term for keeping things moving) - it that an unresolved issue as well? It can cause things to back up and nausea as well. Narcotics are the culprit and appropriate countermeasures must be taken. Talk to your nutritionist and get a laxative with a stool softener. Liquid foods can cause serious constipation, surprisingly. Fiber must be added to the diet.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#40945 04-11-2007 11:58 AM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | To add to Gary's fiber comment- we used a powder called Benefiber [OTC at Walmart] and it mixes well with any liquid to go through the peg. Hope you all get this feed tube problem worked out soon. I'm sure it's causing you both alot of stress. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#40946 04-12-2007 05:54 AM | Joined: Jan 2007 Posts: 22 Member | OP Member Joined: Jan 2007 Posts: 22 | He receiveed his Eributux yesterday and a large IV for dehydration as well as the Zoyfran, Benadryl, and Magnisum. They gave him the Reglan by IV. It helped got two cans in last evening. Took Reglan this Am and could get two cans in, but only 60cc water. He is not on any pain meds, and the Nutren 1.5 is with fiber. I just pray it keeps working. He is less fatigued and weak today after getting some nutrition. I'll keep you posted. Thanks for the ideas.
social drinker, smoked one cigar a week last three years.
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#40947 04-13-2007 02:08 AM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Feb 2007 Posts: 76 | Marvin had a rough time when he would get constipated also. We would not be able to get all of his food down. He would also break out in a sweat and was in alot of pain. We have found out that the extra fluids given him during his chemo helped. We have found a solution that seems to be working for him. We put 8 to 16 oz of prune juice in the tube plus he takes milk a mag. I also try to make sure he gets at least 64oz of water each day. Marvin only has 3 more rad treatments to go. Hang in there. Good luck
Barb CG for Marvin.
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#40948 04-13-2007 03:43 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Robins food is called fortisip fibre and as the name suggests has fibre incorporated.For the constipation he has lactulose twice a day and thus far the combination of fibre and lactulose are keeping everything moving well.Yesterday the nutrionist added a product called calogen which has a large quantity of calories in it.this was because Rob couldnt stomach the volume of liquid involved in taking 8 bottles of fortisip a day.It is a thick oily emulsion and i was supposed to add 30 mls 4 times a day to his feed which gave him an extra 400 calories.this was a total disaster,and for the first time Rob experienced nausea and blow back from his feed so now he wont take that any more.I am having to settle for getting about 1500 calories a day into the peg spread out over three hourly intervals.He is not gaining weight but he is not losing it so i guess that is ok.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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