#40679 02-04-2007 04:12 AM | Joined: Feb 2006 Posts: 136 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Feb 2006 Posts: 136 | Does anyone know about Proton Radiation? I have heard it mentioned once or twice - but don't know much about it. Has anyone on here every had proton radiation instead of the traditional radiation?
If yes, do you know where you can recieve it across the US? I think that MD Anderson had a center - but didn't know if any other centers exist.
Thanks.
SCC Right Lateral Tongue T2N0M0 Dx 01/12/06, Surgery 01/25/06. Partial Glossectomy, Bilateral Neck Dissection - 22 lymph nodes - all clear. No radiation.
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#40680 02-04-2007 05:24 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Amy - There is Francis H. Burton Proton Therapy Center at Mass.General, as well as Loma Linda Univ.Med.Ctr. If you do a google search for Proton Radiation Centers you will see a few.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#40681 02-04-2007 12:52 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | davidcpa posted a link to a description a week or so ago.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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#40682 02-04-2007 04:14 PM | Joined: Feb 2006 Posts: 136 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Feb 2006 Posts: 136 | I read the link - but was wondering if anyone on here has had it or knew of someone who has had it. Seems as right now they are using it more for things like Head and neck where they are sensitive areas. Just wondering if the side effects are the same or different than traditional radiation.
SCC Right Lateral Tongue T2N0M0 Dx 01/12/06, Surgery 01/25/06. Partial Glossectomy, Bilateral Neck Dissection - 22 lymph nodes - all clear. No radiation.
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#40683 02-05-2007 09:30 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | One of our thousand Amys, If your interested there is an interesting article in the December 25, 2006 issue of ONCOLOGY TIMES titled, Use of Proton Therepy Expands. See if you can get it by going to the web site www.oncology-times.com . I had to read it about 3 times before I understood it (at least I think I do). I would scan it but the publication is an odd size, 11" by 15" so try the web first. If you can't get that way, e me and I'll try to copy and piece it together.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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