#40629 01-19-2007 02:09 AM | Joined: Jan 2007 Posts: 2 Member | | Member
Joined: Jan 2007 Posts: 2 | Does anyone have any suggestions to clear up sores in the mouth. Mike has some really bad mouth sores and the medication he was prescribed isn't making it any better, worse in fact. He is scheduled to have a big bag of Cisplatin on Monday and he says he won't get it unless his sores clear up first. Any advise would be appreciated. Thank you, Rene
Rene Walker
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#40630 01-19-2007 04:44 AM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2006 Posts: 137 | If you will do a search of this site on 'mucositis' it will provide more information than I can post here. There are remedies. http://www.oralcancerfoundation.org/dental/pdf/mucositis.pdf
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
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#40631 01-19-2007 04:45 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Rene,
I don't have an answer to the sores because I didn't have them, I'm sure others will. I did have the pain in my throat that made swallowing very difficult and all the pain meds prescribed to me caused worse nausea which they couldn't control. I eventually stopped all meds just so what I managed to swallow, didn't come right back up.
The chemo most likely has nothing to do with the sores...they are a typical side effect of the rad Tx.
Please tell him it's important to continue with his Tx without interruption or change. He may only get one shot at killing his cancer and NOW is that time. We all know what he's going through because we've been there. While his Tx days may seem to last forever, in the scheme of things, this will be a short, but exteremly important period in his life.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#40632 01-19-2007 04:45 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Rene,
You can try baking soda. That will offer him temporary relief anyway. Sorry to hear he is having difficulty. I remember how upset I was when I had a bad reaction to Taxol. I had to skip a week. I thought it was the end of the world. Turned out it wasnt. Good luck.
Talk to you soon,
-rh
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#40633 01-19-2007 06:23 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Rene,The radiation Doc should have 5 or 6 different things for Mike to try for the mouth sores. [also, does anyone know if they are thrush or what???]- the same thing doesn't work for everyone. Chemo should not produce mouth sores unless he gets into trouble with vomiting. Hopefully he will not stop his chemo and both of you need to insist on choices of mouth rinces to try plus good pain meds. This is a tough time Mike is going through. Hope you both can hang in there. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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