#39375     10-31-2005 05:40 AM      |       Joined:  Oct 2005  Posts: 15    Member   |      OP      Member    Joined:  Oct 2005  Posts: 15  |    Hey everyone, I was just in the hospital last week and had a peg tube installed for a later date when I will be needing it.  I am having trouble finding tape that I can tape it to my body without it causing too much discomfort.  I have a hairy chest and stomach, so I need some suggestions on what I can do, and what works?  I know you all have some good answers.  
  Andy      |      |       |                      
#39376     10-31-2005 09:24 AM      |       Joined:  Jul 2005  Posts: 624    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Jul 2005  Posts: 624  |    Barry used surgical paper tape (sturdier than the paper tape you get at the drug store, which is useless) and we also got little pads that are individually wrapped (look like alcohol wipes) which are made by Smith & Nephew and are used to pre-treat areas to be taped or to receive colostomy appliances. You wipe the place to be taped with the pad, let the stuff dry and the tape sticks well but also comes off easily. The RO nurse gave us the tape as we needed it but we also found it for sale in a medical supply shop. Barry also has a  pretty hairy stomach and this really helped avoid the worst of the pain! Each "wiping" works for several days, then needs to be renewed. We also covered the PEG with a large gauze pad to keep it against the body and protected from our dogs leaping up against it.
  (However in Barry's 6th week of treatment, the little internal balloon failed and it fell out -- luckily he never had to use it up to that point. The docs, nurses and nutrition folks all decided he had gotten along so far that it would be more detrimental to re-do the surgery. His was one of a number which failed in same week (bad batch, they suspect)...)
  Gail        
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#39377     10-31-2005 10:36 AM      |       Joined:  Oct 2005  Posts: 15    Member   |      OP      Member    Joined:  Oct 2005  Posts: 15  |    Gail, you have been a fount of information.  Thanks for it all.  
  Andy      |      |       |                      
#39378     10-31-2005 10:43 AM      |       Joined:  Feb 2005  Posts: 2,019    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Feb 2005  Posts: 2,019  |    Elocia,  Before I got my PEG, I had been through a long ordeal from a lumpectomy site on my breast that abcessed and had to be opened and drained and then healed through wet-to-dry packing every day for five weeks.  There was lots of tape used to cover that wound and I developed an allergic skin reaction to almost all tape including the paper tape Gail mentions.  So after a couple of weeks fooling with taping the PEG to my stomach, I got to where I just stuck the tube into the waistband of my pants and trusted that it wouldn't fall out and flop around when I did that and in general that has worked just fine (a couple of times it came out of the waistband when I was wearing pants that were two sizes too big because I'd lost so much weight but I solved that with some new clothes) .            
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia.  "When you're going through hell, keep going"
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#39379     10-31-2005 11:21 AM      |       Joined:  Jul 2003  Posts: 1,163    Patient Advocate (1000+ posts)   |           Patient Advocate (1000+ posts)    Joined:  Jul 2003  Posts: 1,163  |    Hello Andy,
  You might want to shave your stomach and chest. Some of the worst pai I felt was pulling that tape off along with several hairs!!! You can also ask your nurse for the best type of tape to use. 
  Best Wishes, Danny Boy        
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
  Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
  Our good friend and loved member of the forum  has passed away RIP Dannyboy 7-16-2006
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#39380     10-31-2005 12:11 PM      |       Joined:  Nov 2002  Posts: 274    Platinum Member (200+ posts)   |           Platinum Member (200+ posts)    Joined:  Nov 2002  Posts: 274  |    Danny,
  Thank you for an image of you I could clearly do without!
  Glenn      |      |       |                      
#39381     10-31-2005 01:19 PM      |       Joined:  Apr 2005  Posts: 2,676    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Apr 2005  Posts: 2,676  |    Aw, come on Glenn- some people might think that was sexy            
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur  Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
  :
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#39382     11-01-2005 04:15 AM      |       Joined:  May 2005  Posts: 31    Contributing Member (25+ posts)   |           Contributing Member (25+ posts)    Joined:  May 2005  Posts: 31  |    Another trick to use is to put a rubber band around the peg tube forming a loop, then use a safety pin through the rubber band loop to pin to you shirt or ?        
Husband diagnosed 2/9/05 SCC Larynx (piriform sinus)Stage IV,T4,N1,MO cisplatin/5FU 3/21-3/25 & 4/11-4/15, began 39 rad  4/21/05 last rad 6/17/05, mrnd 10/7/05
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#39383     11-06-2005 08:23 PM      |       Joined:  Jun 2004  Posts: 6    Member   |           Member    Joined:  Jun 2004  Posts: 6  |    I pinned an Ace bandage around my chest, then put the peg tube under the bandage with the top sticking out and pinned the tube. I now know why women complin about the dicomfort of wearing a bra. I was able to do yoga at the gym and play golf and never knew the tube was there.        
Recurrence tounge SCC, stage IV, 35 IMRT Radiation and Chemo. Pet scan 10/7/05 results were clean. mac
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