#39354 10-27-2005 08:11 PM | Joined: Jun 2005 Posts: 15 Member | OP  Member
Joined: Jun 2005 Posts: 15 | I am almost 5 months out now, I had left neck dissection and 33 rads. Don't know if this had anything to do with the radiation or not but whenever I bend my head down, I get a tingling sensation that goes the whole way down my back. Went to a massage therapist but that didn't help and she couldn't give me an explanation for the cause. Anyone else ever experienced this? Should I tell my doctor and can anything be done to stop this weird feeling?
unknown primary, one node,left neck radical dissection, 3 chemo, 33 rads. treatment ended 6-15-05
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#39355 10-28-2005 03:39 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | That is a normal post radiation symptom, it feels like a mild shock It should get better over time. | | |
#39356 10-28-2005 03:51 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Barbara, I had the same feeling for quite some time, like over a year. Mine I think has finally gone I think. Have a look at this thread: http://www.oralcancerfoundation.org.../get_topic/f/12/t/000180/p/1.html#000000 Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
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#39357 10-28-2005 05:27 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Absolutely normal Barbara, It is strange at first but will usually get better.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#39358 10-28-2005 07:00 PM | Joined: Jun 2005 Posts: 15 Member | | OP Member
Joined: Jun 2005 Posts: 15 | Thanks for the info., I was beginning to worry and think something else was wrong with me. Thanks Tizz for the link to the thread. Now I can relax a little. I've got my three month pet scan and visit coming up mid-Nov. I'm nervous about that too, does it get easier with time to calm down before a check up?
unknown primary, one node,left neck radical dissection, 3 chemo, 33 rads. treatment ended 6-15-05
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#39359 10-30-2005 05:34 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | Ditto here on all the "wierd" tingles :-)
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#39360 10-30-2005 06:34 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Michael, this discussion is about weird tingles. If you are having wierd tingles that is a different thing.
(i before e except in the English language ) :p
Barbara, it does get somewhat easier over time but I still get a little worried before dr. visits. One day at a time....
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#39361 10-31-2005 07:00 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hey Barb,
I had the same thing. The first time it happened it freaked me right out. I was driving nd dropped something. I looked down and ZZZZZZZAAAAAPPP!
I thought oh well here we go again. Then I found out from the fine folks here that it is normal.
There is a french name for it although I cant remember what it is, it is normal.
Take care Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#39362 10-31-2005 02:53 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | John had them also, but mostly in arms and legs.They have pretty much disappeared now.
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#39363 11-01-2005 01:10 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Didn't have radiation but did get the weird tingles in my neck area from the MND. Took over a year to get feeling back in most of the right side of my neck and tongue.
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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