#34785 04-01-2007 04:20 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Paul
Agian , My heart goes out to you and mom ..I only wish they could find somthing to make her more comfortable
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#34786 04-01-2007 04:24 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | Petey, I have been reading our posts since the beginning. You need to get into treatment and stop going down this path that others have described as resignation to death and an end in the near future. Just from the posts above in this thread it is clear that you are working from bad information. BOT cancers are only treated in the most extreme cases with surgery because of the consequences to quality of life. The treatments are typically radiation and chemo to reduce size and volume and at the end IF necessary, surgery.
Even for those that have a total glossectomy, which are NOT the majority of cases, there is still life afterwards. Is it a complicated and difficult life?... certainly. But it is worth having. I won't bother listing all the famous people that immediately come to mind that have had bad, if not worse situations and still made major contributions to the world. I don't want to appear too calloused here, but you need to quit screwing around and go deal with this while there is time. If you keep waiting, you
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#34787 04-03-2007 09:47 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Petey, Make some phone calls to ACS, I think they helped get my brother into Palms of Pasadena Hospital in St. Pete, Florida. My brother had stage IV testicular cancer and a mass in his abdomen. He did not have health insurance of any kind and they took him in and gave him chemo, and his surgery. He spent a good 3 months there, they were wonderful to him....Thank God he made it through all of it....don't give up!!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#34788 04-03-2007 09:58 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Petey, one more thing and I will leave you alone for the day!
Life is not only about what happens to you, it is about how you deal with it!
Brian, your above post to Petey was not harsh, I think it was perfect,hopefully he will read it and DO something!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#34789 04-06-2007 04:56 PM | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | YES PeteyB Again you must try- I had a full glossectomy and 5 weeks out I'm eating and talking- not super clear yet but getting there. Life does go on. Be BRAVE
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
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#34790 04-07-2007 01:38 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Petey B......are you trying to get some help? There has to be someone in Florida that can help you, what about the doctor's office Gerry gave you, have you heard back? Keep calling.....do not give up! misskate's post is so awesome.....
misskate I applaud you! YOU are very brave....I realize Petey is having problems getting help due to lack of insurance, but he needs to FIGHT!!!!!!
God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#34791 04-08-2007 06:03 AM | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Happy Easter Paul- Thinking of you and your mother today. Hope you get to enjoy the day together
Love to you both- Miss Kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
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#34792 04-08-2007 06:27 AM | Joined: Dec 2006 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Dec 2006 Posts: 36 | Kate,
My mom (Kathleen) is looking forward to later today (we are all heading to my sister's house) for Easter dinner. Of course, I must admit, my eyes will be glued to their 70 inch HDTV watching the Masters final round.
Sadly, Easter was the last holiday my dad enjoyed before his passing. Funny how a single snapshot ends up capturing the true essence of a person. While at my house in 1997 for Easter, a photo was taken of my dad leaning back on one of my dining room chairs. That photo was so wonderful; copies were made for everyone in the family. I smile every time I look at his face in that photo. He looked as content and peaceful as I ever could remember | | |
#34793 04-10-2007 01:38 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Paul,
I hope Easter brought a day of wonderful memories for you and your mom !!! and I hope you enjoyed that TV !! LOL. My thoughts are with you as always! We had a nice easter ..kids got up EARLY ( hahah) and found all the eggs and Easter baskets ....Memories make life worth living ..just to make more !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#34794 04-10-2007 02:22 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Paul,
That picture of your Dad sounds wonderful. I'm assuming you have been taking some of Mom too. Hope the dinner went well.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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