Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
#33441 05-11-2004 10:25 PM
Joined: Apr 2004
Posts: 143
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Apr 2004
Posts: 143
Well, Hey BBA, do you think we`d forget you ? Actually feel like I`m in a big void most of the time!!! But, we won`t forget ya...........Love and Hugs, BA

#33442 05-14-2004 02:52 PM
Joined: Dec 2003
Posts: 47
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Dec 2003
Posts: 47
Oh Dee....... How I wish I had a ceramic bull dog today!


Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
#33443 05-14-2004 09:33 PM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Jeepster
play frisbie with plates... that's good.. take it you are having a bad day?
love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#33444 05-15-2004 03:53 AM
Joined: Dec 2003
Posts: 47
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Dec 2003
Posts: 47
Yes I am! Since we're all family here, I'll go ahead and post the problem. No where can you get straighter answers than right here. I'm dealing with insensitive, negligent medical personel that aren't looking at the big picture. My OWN team... I SPECIFICALLY asked for a peticular screening at my annual physical. I read on this board about it. Well for the first time EVER I turn up with "atypical cells" and I should come back in 3 MONTHS??? WHAT??? Oooops.. and they forgot to run the screening I asked for and they wont do it now for another 3 months. mad I'm so scared this could be related to Don's cancer. Did I do this to him??? confused We've both been completely monogamus(sp?) for over 5 years. Please send all ugly ceramic things to me.
Karen


Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
#33445 05-15-2004 05:17 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Karen
STOP... you are doing what we all do here.. actually we all do it well... YOU are looking for a situation or a person to blame.. you know it doesn't work like that.. If there was one easy answer none of us would be in this sh#t...
try to go over it all.. if they were worried about you.. you would not have to wait 3 months.. and Don's cancer no-way are you to blame... better to blame aliens than yourself...
love hugs and box of plates
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#33446 05-15-2004 06:01 AM
Joined: Dec 2003
Posts: 47
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Dec 2003
Posts: 47
Thanks Helen, Perspective. That's what I need. There's not much I can do about it now. 'Cept maybe throw plates. I think sometimes I read too much but I'm talking about real studies at John Hopkins. They say 80% of us have HPV, and #16 & #18 are the ones related to oral cancer. (It does come with a slightly better prognosis.)I have to get my mind off this for a while... Hey all, Check your e-mails I sent everyone I could on this thread a little stress relief I forgot I had. Turn up the sound. I hope you enjoy.


Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
#33447 05-15-2004 07:38 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Hi Karen
Thanks for mail.. just what I needed.. glass red wine and a laugh.. great... Try not to play the number game.. if 80% have HPV why haven't 79% that's 80% if you include me.. got oral cancer.. who gave it to me CAN I SUE... expect eventualy a connection with a lot of things will be found.. but I will not give up two things.. red wine and ( ok that's the other one) when I'm nil by mouth can I have IV red wine.. hope so.. :rolleyes:
love and hugs.. sorry threw the plates
Helen..


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#33448 05-16-2004 05:16 PM
Joined: Nov 2002
Posts: 458
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Nov 2002
Posts: 458
Just got a chance to check out this thread, Hmm, sounds like we might have an organized activity for the Vegas GetTogether--automatic weapons fire. Will have to get the entertainment director to look into this.

Driving.. Folks complaining about Boston etc should try here in S. China. Traffic signals are only a "guideline" as well as lane markers. First thing taught in driver's ed is to fold the rear view mirror UP so it's out of the way, you don't really need it anyway (I'm not kidding). Very common to see traffic going wrong way on divided boulevards. 4 people on a 150cc motorcycle, one an infant usually riding on the handlebars. Traffic flow is not usually all one direction, about 1/3 of the traffic on a street is traveling at a 90 degree angle from the other 2/3, and this isn't at intersections. Since my company's policy is to not let non-local's drive, I just hide in the back seat of my car behind a book or magazine. But a taxi ride is quite an adventure, ala "Mr. Toad's Wild Ride" at Disneyland.

Dumb question, but after having had this "brush with mortality" and surviving, has anyone else hand a penchant for doing things slightly more risky than they would have before hand. Like ok, I've got a 50/50 chance of not being here 5 years from now because of the cancer. But if I jump out of a perfectly good airplane (wearing the "chute" of course) it's statistically safer than living with this disease. So I'm more likely to go ahead and do something silly like skydiving than I would have if I had not gotten cancer. Still not going to jump out of an airplane, but might try driving in Dongguan traffic.
Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#33449 05-17-2004 10:01 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Hi Bob
Yep I drove in Malta.. whole hotel of men.. and me I hired a car.. the guy delivering it bent it on the way.. me no problem.. I don't have problems anymore.. they are what other people have..so yep lead me to a machine gun.. in the UK every thing is banned.. so if I get to the USA guns are 1st on the list.. can I stand my husband as target... (JOKE).. he's blind and wouldn't duck...
cheers
Helen..


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
Page 3 of 3 1 2 3

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5