#3299 08-13-2004 11:03 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | PS--I'll send updated messages to Helen's brother again tomorrow (Saturday) evening, so if anyone wants to add messages here, Helen will hopefully get them over the weekend.
Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#3300 08-13-2004 03:29 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Helen,
Praise God for you getting thru the surgery! I am praying for you everyday and that all goes well. I am now living in Alabama, been here a week. Sure do miss Maryland and my boys, but Dan started back to work this week. It's been a bit hard and he's very tired, but things are so much better than 6 months ago. I am trying to find my way around Birmingham...I am on a first name basis with the people at Super Wal-Mart here! That's scary!!
You take care, girlfriend, and know that you have many people praying and thinking about you!
Love,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#3301 08-13-2004 04:48 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Helen,
I hear through the "grapevine" that you are doing very, very well with your surgery. I didn't expect anything less. I'm so happy to hear that you are making such good progress. I have a feeling that particular hospital will never be the same again!
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3302 08-14-2004 05:44 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Helen, I am so grateful to read that you are doing very well, you go girl!!! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#3303 08-14-2004 12:23 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Wonderful wonderful news...hang in there sassenach!
Cheers
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#3304 08-15-2004 07:56 AM | Joined: Aug 2004 Posts: 4 Member | | Member
Joined: Aug 2004 Posts: 4 | hi everybody i'm mick, helens brother i am now able to log on myself and have printed off all the messages so far and taken them to helen who read them last night after we had left, i could see from her face that she was pleased to get them so i thank you on behalf of my big sister for all your love and encouragement.
she is doing well she is out of itc and in a room in the high dependency unit she is off oxygen and some of her drains have been removed but she still has her tracheotomy tube so we are communicating with helen repling with written notes as she cannot hold her laptop yet she has been out of bed to sit in her chair but no walking yet i will keep you all informed every 2/3 days or so as i get time thank you all again
Mick. | | |
#3305 08-15-2004 11:32 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hi Mick,
Thanks for the update on Helen. Sounds like she's coming along nicely and good to hear that she's out of bed, off the oxygen and some of her drains have been removed. Tell Helen to hang in there - we're all pulling for her for a speedy recovery. My prayers are will all of you.
Hugs, Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#3306 08-16-2004 04:11 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Just back on line after 6 month vacation and move to Alabama...........checked OCF first, just to find out Helen has had surgery, please let her know know the Wicked Witch of the South wants her to hang in there and many prayer are headed her way......................Love and Hugs, Dee | | |
#3307 08-16-2004 08:21 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Thanks for the update Mick!
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#3308 08-16-2004 10:51 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Mick, Welcome to the site. Thank you so much for updating us on your big sisters progress. We all wish her well, more than I can describe. She has been a faithful friend to all of us and we pray for her wellbeing, strength and recovery.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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