#32996 11-05-2003 09:00 PM | Joined: Jun 2003 Posts: 8 Member | OP Member Joined: Jun 2003 Posts: 8 | I haven't posted recently, because it has taken some time to come to terms with my latest battle. Following two scans that showed nodules in the lungs, I was hospitalized for a surgical biopsy to determine which cancer (breast or salivary gland) had metastasized. As expected, it was the Adenoid Cystic Carcinoma from the salivary gland.
Prognosis is not good and has taken time to accept. I am o.k. with it now and only hope that it is slow growing, as there really is no further treatment that might cure it. Apparently some of the original chemo therapies can be tried later on to slow down growth. Another scan in December will offer a comparison to see how fast it is growing.
I feel fine and am taking it a day at a time and REALLY living for the moment, visiting each of my children in turn.
Thanks to all of you who wrote offering encouragement following my posting in September.
Lily
Stage III Adenoid Cystic Carcinoma, submandibular salivary gland. Diagnosed 10/02. Neutron radiation completed 12/24/02. Stage III breast cancer 3/03. Mastectomy, 4/03. ACC Mets to lungs 9/03.
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#32997 11-06-2003 03:51 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Good Morning Lily,
Just wanted you to know someone out there is saying a prayer for you every day. God Bless, Daniel
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#32998 11-06-2003 09:13 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 139 | Dear Lily, My heart goes out to you. Please be assured that my prayers join Dan's. Come back here and chat, ok? We love you. God bless Judy U
Judy U Stage I SCC floor of mouth, left radical neck dissection 8/03
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#32999 11-06-2003 11:12 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Dear Lily, I have wondered many times in the past 6 months what actions I would take if I am ever in your shoes. I would do as you are doing, worry on my children and spend time with them. Enjoy your children and put yourself in God's hands.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#33000 11-07-2003 09:31 AM | Joined: Sep 2003 Posts: 37 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2003 Posts: 37 | Dear Lily, Not many words are comforting at a time like this, but I will say that I will pray for you and your family and ask that God allows you many, many years to enjoy the family. May God comfort you and give you peace as fear has a way of taking over sometimes...sounds like you feel some peace already. Take care, Debbie
Debbie/Caregiver/wife of Dan, diagosed with SCC tongue, Stage II/III, 1/3 tongue removal, lymph node dissection both sides of neck, skin graph 7/30/03. Left tumor found - radical left neck dissection 12/24/03. Could not get all of tumor/wrapped around carotid artery and in wall of jugular. 1/12/04 beginning of 6 doses of Taxol/Cistoplatin once a week, and rad 70 gray 5 days a week/6 weeks.
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