#2914 06-30-2004 03:31 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 66 | We have come across a new mouth rinse that may be of benefit to those with mouth sores, and in particular to those who have precancerous leukoplakia. It is a very different product than the Biotene mouthwash which the foundation has found to be heavily used and liked by those that frequent these boards, and it appears that this new rinse acts through a different mechanism. It has been brought to our attention by several patients and dentists, and since the company was close to OCF, I chose to go and visit them a few weeks ago. The product is called Betacell, and it is made and sold by a pharmaceutical company in California that specializes in a process called micellization. This is a process where they can take drugs, vitamins, etc. and make them more readily absorbable into the cells directly, as opposed to being ingested. This mouth rinse is essentially a solution of absorbable beta-carotene and other vitamins that have been shown to have benefits in the reduction of leukoplakia in a study done by Scripps Institute. They have chosen not to make extensive claims about its effectiveness to stay away from the heavy regulations that the FDA would require to substantiate them. That is a financial consideration for a company their size. But I have included the study as an attachment to the information about the product and it is there for review. It is only one study, but it was done by a reputable institution, and had significant positive results. They are about to start marketing it through conventional drug store sales, but in the meantime it can be purchased on line from them or by phone. While I have tried the product myself and had good results from it, OCF is providing the information about it on the site as it came to us from Micelle, without representing any claims or endorsements for it. If any of the readers try the product and have good results from it we would like to hear the stories
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#2915 07-01-2004 03:58 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Thank You Brian, will order and give it a try. Have a wonderful day and thanks so much for this Board!!!!SMILE!!!!!!!!Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#2916 07-01-2004 09:12 AM | Joined: Oct 2003 Posts: 25 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2003 Posts: 25 | Thanks Brian I have ordered it and will give it a try. At 7 months out I am still having a real problem with mouth sores.
SCC base of tongue,T1N1M0, Rad & Chemo, treatment ended 12/11/2003
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#2917 07-01-2004 02:13 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Feb 2004 Posts: 372 | Thanks, Brian, I will definitely get it ordered. Besides Dan having SCC and all he's been through, he also does have precancerous leukoplakia...it would be great if this helps that disease as there is little else and not much knowledge or studies going on.
Thanks again, Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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