#29049 05-15-2007 02:47 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | When talking with my MO I asked about moving the saliva glans. He said he would cut a "half-moon" from almost ear to ear under my chin and that both lower saliva glands would be removed in the dissection.
MY QUESTION:
IS THAT THE NORMAL PRACTICE, EXCISING BOTH LOWER GLANDS EVEN THOUGH ONLY THE LEFT SIDE IS AFFECTED?
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#29050 05-15-2007 02:56 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | None of my salivary glands were removed. If anything, there was tons of talk about doing everything possible to preserve what glands could be spared. My radiation was set up to "miss" on large gland and, even though I had conventional radiation, I do pretty good with the saliva. I'm dry but not totally dry and can go all night without a drink, etc. I would ask more questions about this Petey.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#29051 05-15-2007 05:53 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | I'm not sure what's "normal". I had some salivary glands removed during surgery, and also had conventional radiation so that the remaining glands were pretty well toasted. Notwithstanding that, I've gotten back a surprising amount of salivary function over time.
I agree with Minnie that it probably makes sense to ask more questions about the reasoning in your case.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#29052 05-15-2007 06:49 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I wouldn't let them do it Petey UNLESS they are cancerous. They should be doing everyting they can to save them. I unfortunately allowed the doctor to remove my lower one when I had the first neck dissection. His statement was 'well it won't work after radiation anyway, so why not take it out?' I was too stupid to know any better. When I had the second neck dissection, they didn't touch the saliva glands, which had managed to survive XRT and still functioned. Really wish I had not let first doctor remove the other one. I'd really question them on this.
Take care and good luck on Thurdsday. Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#29053 05-15-2007 05:50 PM | Joined: May 2007 Posts: 3 Member | Member Joined: May 2007 Posts: 3 | Hi,
I am new to this site and dealing with new symptoms myself. Fortunately I am a surgical rep and have seen this procedure many times. Often glands are taken bilaterally pending the situation. If he works deep into the tissue be sure to ask for a nerve monitor to protect the laryngeal nerves. It sounds like the appropriate action is going to be taken. Best of luck and our prayers are with you. | | |
#29054 05-16-2007 09:25 AM | Joined: Feb 2006 Posts: 136 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Feb 2006 Posts: 136 | Both of mine were removed. I did not have radiation afterwards as the cancer had not spread - but they did not know that for certain when they removed them. So, it probably depends on each case - if they think it could have spread, where the actual tumor is, etc....
SCC Right Lateral Tongue T2N0M0 Dx 01/12/06, Surgery 01/25/06. Partial Glossectomy, Bilateral Neck Dissection - 22 lymph nodes - all clear. No radiation.
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#29055 05-16-2007 10:18 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | We have just received a copy of all Robins case notes from the hospital,and we knew he had had his salivary gland removed on one side where the secondary tumour was growing ,and i see from the pathology report that it was free from cancer.Rob had a total of 62 lymph nodes removed of which 60 were a negative the 2 positive were associated with the tumour which affected the mandibular gland.My assumption would have to be that when the salivary glands are in close proximity to an affected area they need to be removed for histology.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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