#26460 06-02-2004 06:18 AM | Joined: Jun 2004 Posts: 4 Member | OP  Member
Joined: Jun 2004 Posts: 4 | Hi all I am awaiting a biopsy which is right away...but this waiting is very difficult. I was looking for some information on my symptoms and dont see much and was wondering if anyone here had any experience with a white patch on the roof of their mouth. It is incredibly itchy and it hurts most of the time.It is raised meaning i cna feel it and discovered it because of the itching.and my tongue feels like its been dipped in antiseptic near the back. I know you all arent doctors but i was just wondering if anyone had any experience with something in that area and could share some of their symptoms as I could not find alot of information. Thank you. | | |
#26461 06-02-2004 06:45 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Karey
Cannot myself answer your question.. but Yep waiting for biopsy results is something we all know about.. welcome to the board
prayers... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26462 06-02-2004 07:17 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Karey, hoping and praying for good biopsy results for you! Take Care and God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#26463 06-02-2004 07:18 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | While I can't speak to what might be the issue in your mouth, I can totally relate to waiting on biopsy results. I went through this a couple of weeks ago, and everytime the phone rang my heart jumped into my throat, and my pulse went into overdrive...
As hard as it is, try to relax... It's good that you're taking action to find out what's going on... let us know how things turn out... and welcome aboard!
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#26464 06-02-2004 10:10 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Karey,
I had a white patch on my tongue very similar to what you're describing and mine ended up being dysplasia (pre-cancerous) Even though it's dysplasia they still want to take it all out. If they didn't get clean margins of normal tissue they may have to go back and get the rest. Here's hoping that they got everything. The waiting game is the worst.
Welcome to the site. We're here to help.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#26465 06-02-2004 10:23 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Karey,
I really didn't have to wait for any of my biopsies except the very first one and now that it's been a year, I don't remember what it was like. I can imagine how apprehensive it must be. I don't have any answers for you but I will certainly be praying for good results from your biopsy. Welcome aboard!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26466 06-02-2004 05:07 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Karey, there are many different things that can happen in the mouth, many that are NOT cancer either. You are right it is impossible for us to tell you much. I'll hope it is one of the not so serious things. Please let us know what happens.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#26467 06-02-2004 08:49 PM | Joined: Jun 2004 Posts: 4 Member | | OP Member
Joined: Jun 2004 Posts: 4 | Thank you all very much...ill keep you posted...im just nervous..and i do realize that a white patch can be other things but it doesnt seem to mesh with other symptoms...ill just have to wait and see...the stress is killing me....thank you again | | |
#26468 06-03-2004 07:38 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Karey,
Stress is something we are very familiar with. You can have some success controlling those feelings. The expression living in the moment is key, at this moment you are ok. Just keep telling yourself you are ok until you KNOW differently. Believe me I also know that isn't always easy.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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