#24695 10-30-2007 08:40 AM | Joined: Oct 2007 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Oct 2007 Posts: 71 | I just found this site today while searching the internet for anything information to help me. Fight my fear give me strength. You are in shocked when your are given the DX. I was in surgery within a week of my DX. which was on Oct 17th 2007. I came out of my very well. 1/4 of my tongue and 14 lymph nodes were taken. But 5 of the 14 nodes were positive and 1 was stage 4. At this time I am able to talk and eat and a scar on the side of my neck. But, it has only just begun. I am 43 non smoker with a loving and caring husband. My son is 22 and lives on his own. I start my Chemo and Radiation in Mid November after I heal from my surgery. I am waiting to hear on my dental issues. I have had dental problems all my life so I think next week I will lose all my teeth. How do you and your family get through this ???
Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
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#24696 10-30-2007 08:57 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Tammy, welcome! You've come to the best place! You must still be in shock, and and as I'm sure people here will tell you, your journey has 'only just begun' and there are hard times ahead.
BUT! Read the wonderful support/advice posts from people in exactly in your position, encourage your family to read too. You have a caring family, you have got the surgery out of the way, so you are already 'on the way to recovery' which is marvellous, and keep that thought close to you when times get tough over the next few months. We're all here to help you and there are many knowlageable people here who will advise you the benefit of their experiences and help you realise you are not alone in this. Take care Tammy, Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#24697 10-30-2007 09:10 AM | Joined: Oct 2007 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Oct 2007 Posts: 71 | Brenda thanks for quick reply. I have been sitting here reading through all the forums and can't believe I am not alone. You can feel sorry for yourself then you read about what someone else is going through something beyond your treatment or DX and even worst. I forget about myself and fill my heart pour out to them.
Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
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#24698 10-30-2007 01:31 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Tammy, hi! We can promise that as long as you need to talk, ask questions, or seek support along this journey, there will be people here to prop you and your family up. Brian Hill and his team have given us all the gift of being able to communicate and share accurate and helpful information while fighting this disease. So as you go forward, you don't have to be alone. You may have some serious issues to deal with during the rest of your treatment, so stick with us and hopefully get your hubby on this site also. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#24699 10-30-2007 01:50 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | Hi Tammy and welcome to OCF! We look forward to helping you get through this time...Read and feel free to ask questions. There's always someone who has had similiar experiences and will be glad to try to guide you...Keep us updated as to your progress!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
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#24700 10-30-2007 01:51 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2007 Posts: 231 | Hi Tammy and welcome to OCF. I too had tongue cancer stage 4. My wife was and still is my biggest supporter and she is also my hero. The road ahead is tough but its not as long as you may think it is. We are all here for you and your loved ones also. Please feel free to ask anything you heart desires and remember the only dumb question is the one that you dont ask.
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#24701 10-30-2007 03:20 PM | Joined: Oct 2007 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Oct 2007 Posts: 71 | I am so greatful for the support I have already received. I have been on here for one day and no longer feel alone but still afraid. Thank you so much !
Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
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#24702 10-30-2007 03:29 PM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Tammy -- We are all here to help. I had Stage IV tongue cancer, bilateral neck dissection for positive nodes, 39 readiation, 8 weeks chemo.
You get through this the same way you get through anything -- one day, one step, one minute at a time. Pretty soon those minutes, steps and days add up, and you are done! The pain comes and goes, and sure there are side effects and discomfort and anxiety, but the folks here really help.
I am cancer free today, and that is a joy. Don't know what tomorrow will bring, but today was great, and I am only 15 weeks out from the end of treatment.
Ask lots of questions, do exactly what the doctors say, and you will get through this. Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
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#24703 10-30-2007 03:30 PM | Joined: Oct 2007 Posts: 3 Member | Member Joined: Oct 2007 Posts: 3 | Tammy, I'm with you I just found this site too and I think it is great. I wished I had found it earlier. Things will likely be hard at times but you found friends and I know I would not have made it without mine. 
Tounge Cancer, stage 2, Dx 1/2/07 surgery 1/9/07, radiation 36 treatments, finished 4/25/07
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#24704 10-30-2007 05:03 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Tammy, Welcome and sorry you have to be here.
Please, Please make sure that all of your teeth need to be pulled. Go to a dentist that KNOWS cancer and the effects of radiation. Some dentists pull teeth that don't need to be pulled. Saving some of your teeth is the best thing that could happen.
Take care, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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