#2303 04-16-2004 06:50 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Thank you all so much for your support and words of love and kindness. I almost expected to be blasted for not seeking more treatment, but I think you all have been able to see in my heart through my words!! I'll keep you all updated as I can.
God bless you and your families!!!
Thanks to Brian for starting this incredible forum. You have started a legacy for others to be blessed by for years to come.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#2304 04-16-2004 01:16 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lynn,
It is great to see you back. I missed you! Of course, nobody will judge you for your decision but we all will do anything to support you in any way you need it.
May God Bless you and your family.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2305 04-17-2004 01:25 AM | Joined: Apr 2004 Posts: 18 Member | | Member
Joined: Apr 2004 Posts: 18 | Lynn
I have thought of you many times over the last week and have prayed for you.You will continue to be in my prayers.Believe in miracles | | |
#2306 04-20-2004 04:55 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Lynn,
You have been in my thoughts. I have often wondered what I would do were I to find myself in your shoes and chances are I would choose a path similar to the one you've chosen. I definately understand and respect your decision. I'll be hoping you find the best of luck with this.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#2307 04-20-2004 07:47 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Lynn, you have been on my mind today, my thoughts and prayers go out to you. THINK POSITIVE!!!!!!!God has a plan for all of us, it will be revealed to us one day. I know my words could never provide any sort of comfort to you, but I am praying for your complete healing. Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#2308 04-20-2004 09:08 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Lynn-
I'm praying that your faith will continue to grow during this time and that you and your family will have peace during this journey. God will give you the wisdom to know the path to follow for treatment to make the journey easier for all of you. We see the knots from below the tapestry of life, but God sees the beautiful picture from up above. We'll be with you every step of the way! Share with us so we can share your ultimate victory! Love and prayers, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#2309 04-20-2004 09:48 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Lynn,
You have been in my thoughts and prayers daily. You are truly a strong and corageous woman that I admire immensely for your strength. If there is anything that I can do for you please feel free to ask. I will be hoping for that miracle and keeping you in my prayers....
Danielle
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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