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#202087 09-25-2024 11:11 AM
Joined: Sep 2024
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Joined: Sep 2024
Posts: 4
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Hi friends. My first time here and on any kind of forum. So if I'm not doing it right please point it out, i have thick skin.
8 years ago diagnosed with SSC stage 5 in head and neck. Occult primary but PET scan showed 8 hot spots. Ran the Trifecta, surgery, chemo and over 30 days of maximum IMRT.
TOUGH, as many of you know. I lived. But at a cost. Many of you know the difficulty of recovery. Just when i thought life was returning to normal guess who showed up? ORN.
Was fortunate to have a very skilled surgeon for the Fibular Flap jaw reconstruction.
Life still far from perfect but i am alive and grateful.
Would be willing to share my experiences and what little knowledge i have with others and would appreciate your suggestions for my ongoing issues.
Wishing each and everyone of you the very best.

2 members like this: AMCinPhilly, ChrisCQ
RiverChuck #202090 09-29-2024 11:18 PM
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Hi mate,



Glad to find out this forum and you guys...


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