Hi friends. My first time here and on any kind of forum. So if I'm not doing it right please point it out, i have thick skin.
8 years ago diagnosed with SSC stage 5 in head and neck. Occult primary but PET scan showed 8 hot spots. Ran the Trifecta, surgery, chemo and over 30 days of maximum IMRT.
TOUGH, as many of you know. I lived. But at a cost. Many of you know the difficulty of recovery. Just when i thought life was returning to normal guess who showed up? ORN.
Was fortunate to have a very skilled surgeon for the Fibular Flap jaw reconstruction.
Life still far from perfect but i am alive and grateful.
Would be willing to share my experiences and what little knowledge i have with others and would appreciate your suggestions for my ongoing issues.
Wishing each and everyone of you the very best.
