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#201068 12-04-2021 10:05 AM
Joined: Nov 2021
Posts: 5
Benni Offline OP
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Joined: Nov 2021
Posts: 5
My ENT called 2 days ago with my biopsy results. I do have oral cancer -- squamous cell I guess it's called --???.
I'm choosing to forego chemo/radiation. He will put a pain management team on my case.
My main pain is sore mouth/tongue, earache, and bottom lip feels like I have a cold sore. But there's nothing there. Hurts to talk or eat.

I can use some support and any info needed to make this journey less frightening.

(The introduction thread that I first posted -- I had to check the forum to see if I had any replies. I'm pretty sure I have it checked to receive an email for replies. But I didn't ever get one. What do I do to get that feature?)

Benni #201075 12-06-2021 07:09 PM
Joined: Oct 2019
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Hi, Benni. I am so sorry about your diagnosis and that you have not gotten any replies. My husband never got any either but I did when I posted as a caregiver. Maybe a glitch? This must be a scary time for you. I don’t know if I can be of any help, but I just wanted you to know that someone is thinking of you. If I can help, just let me know. Best wishes.

Joined: Nov 2021
Posts: 5
Benni Offline OP
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Thank you!

Benni #201626 11-28-2022 11:45 AM
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How are you? Any improvements? Sending good vibes, hope you're well 💙


Jdub
Benni #201690 01-01-2023 03:47 PM
Joined: Jun 2019
Posts: 244
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"OCF across the pond"
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Hello Benni,

How are you doing?


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
Benni #201721 01-23-2023 01:19 PM
Joined: Nov 2022
Posts: 26
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Are you interested in exploring treatment options before moving forward? You deserve to have all the information involved before making such a huge decision. There are many amazing survivors here that have had a similar situation to stare down and managed to get through it extraordinary well. If you feel content with your life and comfortable in your path though that is wonderful. If on the edge I think you have a wonderful shot at beating this.


Jdub

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