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| | Joined: May 2022 Posts: 4 Likes: 2 Member | | Member
Joined: May 2022 Posts: 4 Likes: 2 | Hi folks. I'm starting a new adventure next week and looking for advice. After five surgeries for tumors on my tongue, including a hemi-glossectomy with flap replacement April 2021 and another small tumor removal last month, my treatment team is looking at immunotherapy. Next week I meet with the medical oncologist for an initial consultation. I've read enough to know this process can be very complicated and time consuming so I want to get started well. For those who have had experience with immunotherapy, what questions should I be asking? What should I expect down this road? Any help would be appreciated.
Steve
Steve - SCC survivor
first SCC dx in 2016 by oral surgeon through biopsy of leukoplakia and lichen planus; first tongue resection 2016; three resections 2017-2020; partial glossectomy & flap reconstruction 2021; newly dx SCC return + lymphovascular invasion 5/22
tx to date surgery only - no rads, no chemo; speech therapy helpful, diet limited but eating mostly works
waiting for new treatment plan from care team - looking for tx other than full glossectomy
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 70 | I left you a private message with some questions. Brian
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
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