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Joined: May 2022
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Joined: May 2022
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Hi folks. I'm starting a new adventure next week and looking for advice. After five surgeries for tumors on my tongue, including a hemi-glossectomy with flap replacement April 2021 and another small tumor removal last month, my treatment team is looking at immunotherapy. Next week I meet with the medical oncologist for an initial consultation. I've read enough to know this process can be very complicated and time consuming so I want to get started well. For those who have had experience with immunotherapy, what questions should I be asking? What should I expect down this road? Any help would be appreciated.
Steve


Steve - SCC survivor
first SCC dx in 2016 by oral surgeon through biopsy of leukoplakia and lichen planus; first tongue resection 2016; three resections 2017-2020; partial glossectomy & flap reconstruction 2021; newly dx SCC return + lymphovascular invasion 5/22
tx to date surgery only - no rads, no chemo; speech therapy helpful, diet limited but eating mostly works
waiting for new treatment plan from care team - looking for tx other than full glossectomy
Joined: Mar 2002
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
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I left you a private message with some questions. Brian


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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