| |
| | Joined: May 2022 Posts: 4 Likes: 2 Member | OP  Member
Joined: May 2022 Posts: 4 Likes: 2 | Hi folks. I'm starting a new adventure next week and looking for advice. After five surgeries for tumors on my tongue, including a hemi-glossectomy with flap replacement April 2021 and another small tumor removal last month, my treatment team is looking at immunotherapy. Next week I meet with the medical oncologist for an initial consultation. I've read enough to know this process can be very complicated and time consuming so I want to get started well. For those who have had experience with immunotherapy, what questions should I be asking? What should I expect down this road? Any help would be appreciated.
Steve
Steve - SCC survivor
first SCC dx in 2016 by oral surgeon through biopsy of leukoplakia and lichen planus; first tongue resection 2016; three resections 2017-2020; partial glossectomy & flap reconstruction 2021; newly dx SCC return + lymphovascular invasion 5/22
tx to date surgery only - no rads, no chemo; speech therapy helpful, diet limited but eating mostly works
waiting for new treatment plan from care team - looking for tx other than full glossectomy
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | I left you a private message with some questions. Brian
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
| Forums23 Topics18,267 Posts197,184 Members13,385 | | Most Online2,371
Sep 11th, 2025 | | |
|
| |
