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#201296 04-17-2022 07:56 PM
Joined: Apr 2022
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Joined: Apr 2022
Posts: 1
Just joined the group. 17 radiation treatments in. Lost my taste, dry mouth and looking for ideas on what to eat. Tongue burns and I 'm pretty much on scrambled eggs and boost. Thanks for any advice, Chuck

Joined: Sep 2019
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Joined: Sep 2019
Posts: 88
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Hello Chuck,welcome to the group you have come to right place for knowledge and support, I am guessing you don't have feeding tube if you go to currently under treatment section you will find some ideas in my case I had feeding tube so I maintained weight pretty good,try to maintain weigh and rinse with baking soda and salt I did upto 10 times or more a day ,read as many posts as you can that will help you a lot.good luck

1 member likes this: Chuckles
Joined: Aug 2020
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Joined: Aug 2020
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Chuckles

Congratulations on making it this far. I went thru surgery and radiation about 2 years ago. The list of what tastes OK, as you already found out, gets pretty short. A couple ideas - try simple puddings such as vanilla or chocolate, green beans tasted normal all the way thru, french toast, pancakes, simple soups, soft bread with butter, jello. Try blending things with a vitamix or similar. I would dump an avacado, protien drink or mix, in with vanilla ice cream, bland fruit (mango, banana, etc) and milk/almond milk, to try and jam some calories in there.

Track your calories. Force the min 2,000/day. Stay active (walking, yoga, biking, etc) if you can. It will help your recovery. Food/flavors get worse all the way up to about 2 weeks after your last treatment. But, the good news is, it starts to get better after that. I am still finding foods nearly 2 years later that are returning. Most food taste good again.

Sending you prayers and good vibes.

Nels


OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20

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