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#200949 08-27-2021 10:40 PM
Joined: Feb 2021
Posts: 1
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Joined: Feb 2021
Posts: 1
Hello Everyone - My beautiful mother died in December 2020 from oral cancer. She had a massive tumor (bot) about 6 cm that was misdiagnosed twice during COVID. The ENT surgeon removed some from her tongue, "debulked" the bot mass, and gave her a trach. The trach was horrible. She was supposed to undergo aggressive chemo and radiation, but she had a stroke and this complication lead to her death. I feel as though the trach and maybe even the surgery could have been avoided with chemo and radiation, but he said she needed the trach to breath. Is this typical?

Joined: Jun 2007
Posts: 10,506
Likes: 2
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,506
Likes: 2
Im very sorry for your loss!!! I cant imagine how much you and also your mother went thru before she passed away. This must be very hard for you and your family.

Im sorry you have not received replies!!! Unfortunately our organization is made of regular people who do not have medical backgrounds, education, hands on experience or the kind of knowledge to attempt an answer. Thats probably why Im seeing a lack of replies. When its something only a doctor or medical professional would be able to answer this happens. Were just a group of OC patients/survivors and caregivers (like yourself) who know the "everybodys different" rule applies to this type of question. Comparing patients doesnt help us either as theres far too many variables making each person an individual which also isnt something we could factor in to help us answer. The people you would get the best medical advice from are doctors or many of the other medical professionals associated with your mothers case.

Best wishes with everything!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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