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#200859 06-16-2021 06:56 AM
Joined: Dec 2018
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I'd love to hear about your experience

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Let me put his another way. I just started a second course of chemo-radiation therapy yesterday (hypopharyngeal squamous cell)and there doesn't seem to be a lot of information out there for two timers. I'm hoping that someone out there can share what that's been like and any long term quality of life issues they may be experiencing. My first diagnosis was in 2013 (base of tongue)and I was told this new round seems likely caused by the first treatment.

Anybody care to take a swing?

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Hi, My husband had radiation twice along with a major dose of more chemo. On the anniversary of 6 years being cancer free from stage 4 HPV positive head and neck cancer , He was diagnosed with small cell in his trachea. They call it Extrapulmanary Small Cell because it was outside of the lungs. His radiation dose was not as strong as the dreaded first time but his Chemo was way more. He did well thru the treatment and didn't have many side effects from the radiation like before. He is 1.5 years out and every day is a gift. Blessings to you.
Charm


Husband diagnosed 2/13 lower lip scc in situ 2 surgeries never scanned. 8 months later diagnosed soft palate scc stage 4A, tonsil and nodes involved. Hpv positive. Told by ENT small t1 tumor brought in to surgery for tumor removal and neck disection. Aborded surgery. Stage 4!! Finished rads and chemo Jan 2014. Grade 4 ORN of the maxilla, 30 HBOT , sinus surgery , maxilla surgery, buccal flap 4/2015. Doing good. 9-2015 red patch on soft palate , waiting to see.
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Thanks for sharing. So much of what has helped me is hearing other peoples stories. Bless you back


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