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| Joined: Feb 2013 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2013 Posts: 53 | Good Evening Friends! It has been almost three years since my last surgery (Partial Palatectomy) and I have been experiencing a lot of food leaking into my nasal cavity when I eat. I have only 6 teeth in the left upper jaw and all other upper teeth have been removed due to the initial and recurrent tumors in the gum tissue of the right upper jaw. I have done pretty well with eating enough solid food to stay healthy, but the issue of food in my nasal cavity makes eating with others very difficult. I can not have the flap surgery to close my palate as the prosthodontist says he can not make a prosthesis with teeth if the flap is installed. I am grateful to be living a full life in spite of this 11 year cancer journey, but if there is a prosthodontist out there that can help with my complicated situation, I would love the name and location! Thank you!
Teacher Karen DX: SCC of right maxillary alveolar ridge, 9/2010. Surgery 11/2010, removal of 4 teeth and gum. Surgery 11/2012, removal of 3 teeth and gum. IMRT 1/2013-2/2013 Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum. Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection. Cetuximab based chemoradiation 64.8 Gy to resection bed. Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection | | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2018 Posts: 345 Likes: 8 | I was on faculty in an Orthodontic Dept at a Dental School. We used to make obturators for newborns with cleft palates. You could try calling a dental school if you are near one and see if you can get one made there or get a recommendation.
Spouse of 58 yr old with BOT cancer Stage 4a HPV16 positive 3 chemo treatments cisplantin 35 radiation treatments 7000 cGy former smoker/chewed tobacco for 38 yrs. 1/2020 diagnosed with cancer near TMJ 4/2020 chemo 5 days every 2 weeks 6/2020 proton therapy 9/21/2020 cancer free
| | | | Joined: Feb 2013 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2013 Posts: 53 | Thank you Connie for your reply! That is a good suggestion and I appreciate you sharing your experience. Hope all is well with your husband! Karen
Teacher Karen DX: SCC of right maxillary alveolar ridge, 9/2010. Surgery 11/2010, removal of 4 teeth and gum. Surgery 11/2012, removal of 3 teeth and gum. IMRT 1/2013-2/2013 Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum. Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection. Cetuximab based chemoradiation 64.8 Gy to resection bed. Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection | | |
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